Connective Issues Winter 2026
First page
Table of contents
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Last page
Message from Michael L. Weamer, President & CEO
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On-Demand Answers for the Marfan Community
3
Donor Power Advancing Bold, Global Research
4
Texas Fishing Tournament Reels in Support for Marfan Syndrome
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How a New Resource Helped One Family Be Heard in the ER
8
Three Aortic Surgeries: A Story of Recovery
9
Supporting Children with ADHD and Genetic Aortic Conditions: What Families Need to Know
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Finding Strength in Every Step
12
Upcoming Events
13
How One Family Found Peace of Mind Through a Free Foundation Resource
14
We Remember and Honor
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