Connective Issues Winter 2026

Know. Connect. Thriv ve.

in t heNewYear

A new year brings new opportunities to learn, connect with others who under stand your journey, and take steps toward living well with Marfan, Loeys-Dietz, VEDS, Stickler, or a related condition. From community walks and educational webinars to in-depth symposiums, our upcoming events are designed to provide you with trusted information, meaningful connections, and new ideas for the year ahead. We invite you to explore what’s coming up and join us as we continue to learn together, support one another, and move forward toward thriving. Note: Not listed are our many support groups o ff ered throughout the month. From grief and loss, pain management, condition-specific groups, and more, we have something for everyone. Visit Marfan.org/calendar.

FEBRUARY Marfan Awareness Month 1 ........... South Florida Walk for Victory 18 ........ Webinar: How to Read a Genetic Testing Report: A Practical Guide for Individuals and Families 20 ....... Chicago HeartWorks Gala 23 ....... Webinar: Lifecycle of the Aorta 25 ....... Webinar: Lifecycle of the Aorta Replay with Live Q&A MARCH Loeys-Dietz Awareness Month 5 .......... Webinar: Rooted & Resilient: Mindfulness Tools for LDS Advocates 8 .......... Phoenix Walk for Victory 8 .......... Paris Half Marathon: Team Victory 15 ........ Houston Walk for Victory 18 ........ A Lunch with Heart, Palm Beach 21 ........ Southern California Walk for Victory (Costa Mesa) 28 ....... Kentucky Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS APRIL 11 ......... Nashville Walk for Victory 12 ........ Paris Marathon: Team Victory 18 ........ Italian-Language Summit 25 ....... Tampa Walk for Victory 25 ....... North Carolina Walk for Victory (Raleigh) 30 ....... Innovators and Career Development Award Announcements MAY 3 .......... Memorable Moments Luncheon NYC 16 ........ Iowa Walk for Victory (Des Moines) 25 ....... Women’s Health Webinar: Menopause 30 ....... Northern California Walk for Victory (Palo Alto) TBD .... Philadelphia Walk for Victory The Foundation will once again host Camp Victory for kids, teens, and families this year! Registration will be open soon. ★ Camp Victory for Kids: July 5-10, GA, and July 26-31, CA ★ Camp Victory for Families: Sept. 25-27, GA, and Oct. 23-25, CA Questions? Contact Andrea at afriedman@marfan.org. 3 .......... DC Metro Walk for Victory 9 .......... Denver Walk for Victory 9 .......... New York Walk for Victory (Long Island)

View all upcoming events at Marfan.org/calendar.

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