Connective Issues Spring/Summer 2025

22 MANHASSET AVENUE PORT WASHINGTON, NY 11050

MEMBERSHIP CAMPAIGN YOUR GIFT SAVES LIVES!

“As a clinical researcher, I see firsthand how patients with rare conditions like Marfan, Loeys-Dietz, and VEDS are often overlooked—not because the need is small, but because the incentives are. Without dedicated research funding, progress is slow, as industry investment in rare diseases remains limited. But these patients deserve more. With sustained support, we have the opportunity to develop better treatments— and offer real hope.” ~Dr. Julie De Backer, Scientist

Check out the professional speakers on page 9. View the program and sign up today! Marfan.org/conference

SUPPORT RESEARCH Renew or become a member today. Marfan.org/membership