Connective Issues Spring/Summer 2025

WE REMEMBER AND HONOR We are grateful to our members and friends who made contributions in memory of, or in honor of, the following individuals between December 1, 2024 - March 30, 2025. These donations support our programs and services that help create a brighter future for people living with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and VEDS. Donations to Walk for Victory are not included. If you would like to remember or honor someone special, please visit Marfan.org/donate . DONATIONS IN HONOR & MEMORY

Christopher Paulsen Vince Payne Roberta Pfleging Josefina Piape Carolyn Powell Vicky Prager Jackie Prindle Frappa Quandt Erin Ramsey Jennifer Rankins Mark Redding Briley Reiland Ann Reinking Regan Remulla Jonathan Reyes Mark Rodriguez Linda Rohrbaugh Michael Rosales Donnie Roth Kaylana Lee Ryan Pam Scanlon Spencer Sellas William Selvitelle Jeremy Semanoff Randi Semanoff Ava Shaw Michael Shaw Thomas Edward Sheehan Vicky Simmerman Tristan Sims Justin Sivertson Erik Smith Steven Smock Glenn Snellgrose Yvonne Stockert Margaret Stolle Simon Sturgeon Bridget Sweet Michelle & Bodhi Swindle Greyson Templeton Luke Terrell Kokila Vakharia Barbara Vasilatos Jennifer Volpe Rosy Wakat Willa Hilton Walker Angelica Wankowski Karen Weil Alana Wesley Larry Wheaton Leslie Ann Whittington John (Jack) Wides Henry Wied David M. Williams Cheryl Williams Mark Wilson Denise Winter Rita Wronkiewicz

IN HONOR OF Lois Lorenz Acheson Andrea Aguiar All Marfan Folks Caroline Arpin Zoila Arredondo Tammy Asplund Lauren Atherton Celina Au Filip Avramovic B M Gabor Bagameri Joe Bailey, Jr. Maren Bain Nora Baker Caroline Bange Ricardo Belchior Team Berkowitz Billups Family Jerry Bluestein Izaak Boeglin John Bois Matthew Bonham Crystal Bonnichsen Adam Borkey Boston WFV Teams Rachel Bowen Juan Bowen Sebastian Brady Rebecca & Dr. Alan Braverman Sean Broadbent Beth Brobst Bonnie Brown Brody Bullock Christopher Burke K & B Butvick Quade Bywater Dr. Duke Cameron Abby Campbell Cristi Caviness Aaron Cheng Kim Christensen Avery Clark Huxley Clark Micah, Connor, & Audrey Amdur Clark Dani Beth Clements Leo Cole Florence Emma Cook Caitlyn Cooke Dr. Joseph Coselli Mia Costa Christian D’Angelo Jeffries Alexis Davis Camden Davis Tori Derrig Nana Devore Belle Banke Bibi Barrera Curtis Bates Rob Beard

James Dickey Lynn & Ben Diehl J. Doehring Haley Dostalik Joseph Doyle Nik Dragicevic Diane Dye Charles Dye Gabriella Earnhart Cory Eaves Celina Emmanuel Ellen England Mary & Billy B. Essers Diane Everett Rahel Eyassu Lindsay Fabri Eula Fehnel Eric Filipkowski Catherine Foscaldo Genevieve Franco Nikki Frey Sofía María De la Garza Heather Gooch Talia Gorecki Earnest Graham Peri Masterman Graybill Isabella Green Amy Grimshaw Jack Guglielmo Avery Gunn Hadley Gunn Landon Haddad Creasie Hairston Connor Hajj Joanne Hall Stella Hall Christian Hampton Brandi Hancock Harper Hancock Sherry Heldt Stan Henkin Kaycie Henry Rocco Hermogenes Lincoln Hervatin Beckett Hotchkiss Elizabeth Izquierdo Gail Jehan Thomas Jehn Sydney Jenkins Alix McLean Jennings Cassie Jennings Kerry Johnson Cooper Jones Tim Joyce Jameson Justen Ninah K Laurel Killough David Kirkbright Dave Holden Jace Holmes Tom & Tammy Host

Landans Ninjas Torsten Nordstrom Maryanne Nowacki Ryan O’Sullivan Mayte Padron Maria Francisca Riera Pan̈ ella Tristan Pasterick Nishani Patel Lottie Perkins Pamela Peterson Cullen Petrella Elizabeth Petty Alberto Pochettino Kendall Podson Bill Polis Dr. Reed Pyeritz Austin Ramirez Guidry Ramoin Joaquin Ramos Zaya Reed James Richardson Lisa Ritell Amanda Rivera Brock Robertson Adaleigh Rodriguez Dylan Rohrer Diane Ross Gary Sanderson Carlee Schwartz Elizabeth Senters Zahrah Shahab Michael Shaw Stancie & Fulton Sheehan - Amon Colin Shields Malakh Shrestha Austin Sisk Spencer Skrzypiec Evan Smolen SoCal WFV Teams Jared Pond Anne Power Cynthia Stephens Christopher Stuart Brooks Stukey David Style Nicholas Sumberaz Jessica Syma Lincoln Taubert Jane Taunton Angela Taylor Brinley Taylor Miles & Henry Tays Nicolas Teune Jason Theriault Tammy Thomas Maggie Tucker Townes Turner Tommy Villanueva Blake Walker Lucy Solove Christopher Springer Mila Stamer

John DeMasi Graham DiMartino Sweeney Doehring Karen Dragon Kelsey Dresser Clifton Stewart Durand Paul East Michael Enbar Peggy Encinia Kent Farley William Feinstein Max Fernandez Eric Fitzgerald Mark Fosdal Olasupo Fowowe Edwin Morris Friedlander Grace Friend Melodie K. Friesen Tim A. Frontz Sarah Fulop Bryan Funk Michael Jack Furey Matthew Garcia Tina Gee Gail Johnson Rachel Goodman Julie Goodman Andrew Gross Shawn Grunberger Gabi Guaipatin Linda Hacker Jennifer Harms Christine Hawley Kellie Germaine Hayes Chris Heaney Fred Hearn Richard D. Heim Michael Henter Willie Higa Richard E. Hill Dave Holden Max Hommel James Gerald Hon John Houghtelin David Hufnagle Scott Hunefeld Dwight Hurst John A. Houghtelin, III Eileen Ilberman Laura Ivan Michael “Mick” Jackson Ann Jarosz Jennie Courtney Whitmore Jensen Renee Jessup Kimberly Jessup Evan Jesus Lloyd Johns, Jr. Mike Johnson Bill Johnson

Brendan Kledzik Brady Klefman & Family Dawn Knowles Brice Kowall Sadie Kowall Nicole Kramer Rebecca & Sarah Kryger Dr. Ronald Lacro Haley Langford Hailey Laufer Milan Lazorcik Christian LeHew Judi & Jerry Lerman Sydney Lerman Leroy Family Sinclair Li Dr. David Liang Charles Lincoln Little Bear Landon Lloyd Anna Love Daniel Lugano Eleanor Magel Lubka Marfan, VEDS, Grant Martin Rachel Martin Grey Matthews Peyton Matthews Aven McBride Meredith McKeever Russell McLendon Marfan Foundation Staff Cannon Medina Bert Medina Amelia Meyers Ben Mickey John Lewis Mietz Franklin Miller Bryleigh Mon Barb, Lara & Aaron Mooney Claire Moore Madeline Moore Vix Morales William Morgan Hudson Morris Robbie Mudroch Christy (Fuerbringer) Nath Eli Neisius Theresa Newton Carter Nietrzeba Ben Kuehn Foxy Kusin Sara Kyle LDS & other CTC Communities Lulu Maher Bella Marin Kristina Milam Bailey Milburn Jess & James Milburn

John Ward Lauren

Michael Jordan Jerrod Jung Kenneth “Doc” Kelly Martha King, RN Robert J. Kitson

Wasserman

Alexandra

Weygand Whitehead Family Leslie Whittington Henry Wied Isabella Williams Matthew Williams Connor Wilson Anna Witiuk Vicki Witt Emma Yarbrough Heather Young Sei Zabala IN MEMORY OF Antone A Mary Beth Adams Adrian Vega Alcantara Yuen Kuen Au Jack Baldwin David Barry Walter (Bud) Beck Devi Bellows Scott Bergkamp Jeff Berkowitz Brandon Billings Michael Blake Warren Bonner Adam Borkey Gladys & Bernard Brady David Braverman Jennnifer Buffone Brody Bullock Leah Burke Everett Butts Jerry & George Butler Gabrielle Cannistraci Andie Carpenter Richie Anthony Casale Sarah Cayo Kuo-In Chang Peggy Chapman Brooke Chapman Joe Chavez Aileen Cheng Steve Ciccariello Richard Coren Callie Cornely Heather Cottier George Covington, Jr. Blaise Dafoe C.J. D’Angelo David Michael Darato Rita C. Dean John DeBlecourt Eric Ames Virginia S. Anderson Angelo Asimakopoulos

Julie Kurnitz Gene Kutner Tomas Lagos David Laufer Jack Laufer

Brian Laughman Alexa Lawrence Denise Lee Jack Lemmer Claire Levens Charles Lincoln, Jr. Mary Lobo Margaret Eddy Lucas Rudy Luna Shane Madden Richard Makanoff Harold Makanoff Frank Marin Norman Martin Mason Mascato Albert Matsuura Erica Mayton Margaret McCabe Scout McCauley Greg McLean Connor Metz Larry Meyer Jon Lewis Mietz Sarah Serbousek/ Miller Luis Daniel Kaitlyn Morales Andrew Morrell Sandy Moyer Mary Anne Muriello Debbie Murray Arnold Muzzarelli Lauren Bates Naddy Aron Nelson Joseph Neustadt Anne Newman Phil Newsome Patricia Nicolosi Jon Niemi Otto Nitschmann Zachary Nulph Michael Nygaard Rodney Oberle Sharon O’Malley Traci Owens Daniel Miriti Pacheco Carolyn San Paolo Rodriguez Montesino Haley Monts John & Eleanor Moore Ash Morales

Mike Yasick Tom Yasick

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Spring/Summer 2025