Connective Issues Spring 2023

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Message from Michael L. Weamer, President & CEO2
The Marfan Foundation's 39th Conference3
Foundation Receives 2023 Mental Health Impact Grant4
HeartWorks St. Louis5
Meet Ryan, Director of The VEDS Movement5
Pursuing Your Passion While Living with a Connective Tissue Condition6
Family Triples Their Donation after Companies Match Funds8
My Mission Tell People about Marfan Syndrome9
Second Spanish Summit a Success10
Mental Health Resources: More Accessible Than Ever11
Camp Victory Making Memories to Last a Lifetime12
Get Connected: Upcoming Events12
The Passing of Two Former Foundation Leaders13
Ready, Set, Run for Team Victory…at Disney!13
We Remember and Honor14

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