Connective Issues Spring 2023

Second Spanish Summit a Success The Foundation held its Second Spanish Summit on Marfan and Related Conditions in January, attracting Spanish-speakers from 22 countries. The Summit, which was held on January 21, featured presentations on clinical and genetic diagnosis, imaging, family planning, aortic surgery, and quality of life. The speakers were: • Juan Bowen, MD, Mayo Clinic, Rochester, Minnesota, USA • Arturo Evangelista, MD, Hospital Universitario Valle d’Hebron, Barcelona Spain • Carlos Esteban Martin Lopez, MD, PhD, Hospital Universitario Puerta de Hierro Majadahonda, Madrid, Spain • Laura Muiño Mosquera, MD, Ghent University Hospital, Ghent, Belgium • Juan Pablo Trujillo-Quintero, MD, PhD, Parc Taulí University Hospital, Barcelona, Spain The impact of the Summit can be summarized with this one comment, sent to us during the event by one of the participants. He told us: A huge hug from Columbia. Thanks to the first Summit, I

Un abrazo enorme desde Colombia. Gracias a la primera conferencia supe que tenía que operar mi aorta descendente, y ahora tengo una nueva. Mil gracias.

found out that I had to have an operation on my descending aorta, and now I have a new one. Thank you.

We extend a special thank you to our organizing committee:

Juan Bowen, MD Mayo Clinic, Rochester, Minnesota, USA

Arturo Evangelista, MD Hospital Universitario Valle d’Hebron, Barcelona Spain

Betsy Matarrita Community Volunteer CostaRica

Bert Medina President and CEO, WPLG-TV, Miami, Florida

Laura Muiño Mosquera, MD Ghent University Hospital, Ghent, Belgium

Plans are underway for additional Spanish programming, including the Third Annual Spanish Summit in early 2024. In the meantime, we invite members of our Spanish-speaking community to connect with us on our Spanish Facebook and Instagram (@lafundacionmarfan).

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