Connective Issues Winter 2018

RESEARCH

“My son has Marfan. He faced life-saving surgery this past June. Knowing there is research being done—and support available—is helping him and his wife get through this trying time of recovery.” – SHERRY, VERMONTVILLE, MI

“As a person with Loeys Dietz syndrome, I love that The Marfan Foundation is doing critical research to make my life and the lives of others so much better. Without your strong network, I probably wouldn't have survived the descending aortic dissection I had last year.” – ALLISON (ABOVE CENTER), OAKLAND, CA

SHERRY’S SON, DJ, AND HIS WIFE KIMMY.

“People with Marfan syndrome are living healthier, longer lives because of research. My daughter lost her father when he was only 39. She is now 47 and looking forward to many more years of active living.” – DIANE, FORT LAUDERDALE, FL

The Marfan Foundation always works tirelessly to advance research that saves lives and dramatically enhances the quality of life for people living with Marfan syndrome and related disorders. The research that we’ve supported has helped reduce life-threatening problems from these conditions, identified treat- ments that have improved the quality of life, and helped people to live a long life with Marfan syndrome and related disorders. We continue to support this research because we know there are still people struggling on their medical journey and lives that need to be saved.

DIANE’S DAUGHTER, MONIQUE, AND HER HUSBAND.

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