Connective Issues Spring/Summer 2025

 Dr. Sherene Shalhub (right) with Dr. Lisa Wilsbacher, Conference 2023 Sherene Shalhub, MD, MPH I’m truly looking forward to connecting with colleagues and sharing ideas that push our field forward. Being part of a forum that fosters collaboration is always energizing. Conference creates a space where meaningful conversations happen. It brings together diverse voices, cutting-edge research, and practical strategies that strengthen our community and elevate our collective impact. Come with curiosity and leave inspired. This conference offers not only incredible learning opportunities but also a welcoming community where your voice matters. It’s the kind of experience that stays with you long after it ends. Glen Iannucci, MD I’m excited to attend the Marfan

Our 40 th Conference is the place to be! Join your Foundation family for a fun-filled weekend of connection, a 40 th Celebration & Victory party, and the chance to learn more about Marfan, Loeys-Dietz, and VEDS from the brightest minds in the field. Hear from more than 40 of the world’s foremost medical experts! From cardiologists, surgeons, geneticists, orthopedists, and more, Conference will have the latest information you need to stay up to date on Marfan, Loeys Dietz, and VEDS. Register today to meet the experts in person and get your questions answered. Conference offers more than 60 educational sessions and workshops. Some medical topics covered include surgery, pain management, vision issues, orthopedic care, oral health, genetics, exercise, and family planning. There will also be workshops covering quality-of-life issues like mindfulness, art, traveling, and more, as well as onsite support groups and many opportunities for connection with the community. Sign up today! Learn about the speakers, workshops, and networking opportunities at Marfan.org/conference . Planned Medical and Mental Health Presenters Anna Agoston, PhD

Foundation Conference in Atlanta because we [Children’s Healthcare of Atlanta] are the host institution, and we can’t wait to welcome everybody. It’s always a great time to reconnect with national experts in Marfan syndrome and related conditions, as well as provide a service to the community and attendees.

Ron Lacro, MD Rebecca Leleiko, MD

With last year’s conference being virtual, this year represents an opportunity to be back side-by-side with other patients, families, and healthcare providers. By attending, you can expect to gain knowledge that’s at the forefront of research and development for treatment of patients with Marfan syndrome and related conditions. Additionally, you’ll be able to connect with community members and other patients and families like yours, and certainly, we hope that there’ll be a dose of Southern hospitality since it is in Atlanta. Gretchen MacCarrick, MS, CGC I’m looking forward to being a

Nneka Alexander, PhD Adam Bitterman, DO Meg Boeglin, BSN, RN Juan Bowen, MD Alan Braverman, MD Maya Brown-Zimmerman, MPH, CGC Peter Byers, MD Mariah Corcoran, LCSW Richard Devereux, MD Jefferson Doyle, MD, PhD, MHS, MA(Oxon) Ismail El-Hamamsy, MD, PhD Sylvia Frazier-Bowers, DDS, PhD Ben Gold, MD Steven Goudy, MD, MBA Duke Cameron, MD Heidi Connolly, MD

Bradley Leshnower, MD Mark Lindsay, MD, PhD Gretchen MacCarrick, MS, CGC Irene Maumenee, MD Dianna Milewicz, MD, PhD Shaine Morris, MD, MPH Nupoor Narula, MD Enid Neptune, MD Siddharth Prakash, MD, PhD Reed Pyeritz, MD, PhD Diane Rich, PT, DPT Mary Roman, MD Joshua Rosenblum, MD, PhD Melissa Russo, MD Denver Sallee, MD Sherene Shalhub, MD, MPH Cori Snyder, MM, LPMT, MT-BC Paul Sponseller, MD Stephanie Wechsler, MD Bryan Wells, MD Byron Williams, Jr, MD

speaker at Conference because I al ways learn from attendees—what is on their mind and what their ques tions and observations are. It helps me go back and answer questions in my own clinic. Conference is really invaluable. I guarantee there will be a new re

Anthony Guerrerio, MD, PhD Kathryn Holmes, MD, MPH Glen Iannucci, MD

Luciana Young, MD Alyssa Zellner, NP

search topic, interaction where you learn from another family or individual, or a new piece of knowledge that will expand how you view, treat, or relate to your condition. The knowledge, connections, and memories you make at Conference will sustain you and your family for years.

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Spring/Summer 2025