Connective Issues Spring/Summer 2025

Create Lasting Memories at Camp Victory Imagine laughing with friends under the stars, conquering a challenge you thought was impossible, or just feeling like you belong. At Camp Victory, you can create core memories that will last for years to come! Sign up today for an adventure filled with connection, growth, and unforgettable experiences - all in a safe environment. Camp Victory for Kids ★ Georgia: July 13-18* ★ California: July 27-Aug. 1 *The Georgia camp for kids will be held after our 40 th Conference, July 10-13, in Atlanta so kids can continue building friendships in an exciting and safe environment. Visit Marfan.org/conference for more information. Camp Victory for Families ★ Georgia: Sept. 19-21 ★ California: Oct. 24-26

“I will be one of the counselors at Camp Victory this year. Before I was a counselor, I was actually a CIT (counselor in training), and before I was a CIT, I was a camper. Camp Victory has always had such a special place in my heart because it was the first time that I met another person that had Marfan syndrome. That’s the great part about this...you get to meet people that have the same connective tissue disorder and that understand the same struggles that you have. If you like rock climbing, boating, swim

ming, arts and crafts, and archery, then Camp Victory is definitely the place for you. One of my favorite memories is the time we had a talent show and all the campers were able to pick a song. They got their props and their costumes, and really just showed their per sonalities when performing. If you all want to come out to camp this year, I’d love to make some more memories, and I can’t wait to see you all there!” -Kensie McComas, Camp Victory for Kids Counselor, Georgia

PICTURE YOURSELF HERE!

Sign up today! Marfan.org/campvictory

Upcoming June 1 – Walk for Victory: Milwaukee June 2 – Board of Directors Meeting (NYC) June 3 – 25 th Anniversary HeartWorks Gala NYC June 7 – Walk for Victory: Denver June 14 – Walk for Victory: Pacific Northwest June 14 – Walk for Victory: New York City June 14 – Walk for Victory: Chicago June 17 – Webinar: Cerebral Spinal Fluid Leaks (CSF) in Marfan and LDS June 7 – Walk for Victory: Philadelphia June 7 – Walk for Victory: New Jersey

Events 2025 July 10-13 – 40 th Conference & Health Fair, Atlanta July 13-18 – Camp Victory for Kids, GA July 27-Aug 1 – Camp Victory for Kids, CA September 13 – Walk for Victory: Cleveland September 19 – Aortic Dissection Awareness Day September 19-21 – Camp Victory for Families, GA

September 21 – Berlin Marathon October – VEDS Action Month October 5 – Walk for Victory: Indiana

October 24-26 – Camp Victory for Families, CA October 25 – Cincinnati Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS October (date TBD) – Walk for Victory St. Louis October (date TBD) – Walk for Victory Salt Lake City

June 21 – Walk for Victory: Boston June 21 – Walk for Victory: Michigan June 22 – Walk for Victory: Iowa

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