Connective Issues Fall 2025

Creating Life-Saving Devices: Supporting the Genetic Aortic Community D i

Terumo Aortic, a global medical device company, invit ed Eileen Novins, the Foundation’s Chief Global Business Development O ffi cer, to tour its Glasgow, Scotland, man ufacturing facility in June, prior to the Edinburgh Aortic Summit. The company develops grafts and stent-grafts used in the treatment of people living with Marfan, Lo eys-Dietz, VEDS, and related conditions. During the visit, Eileen had an opportunity to meet Terumo Aortic’s Chief Executive O ffi cer, Erik Pomp, and Chief Commercial O ffi cer, Tarik Pacuka, and observe firsthand the multi-step process of how the grafts are made. “Visiting the Glasgow facility gave me a unique oppor tunity to learn the process of making grafts, from creating the materials to shipping them out; it was fascinating,” said Eileen. “I appreciate the company’s e ff orts to advance sci ence and improve quality of life and longevity for people living with genetic aortic and vascular conditions.” Previously, Eileen participated in Terumo Aortic’s annual Patient Day event at its facility in Sunrise, Florida, where she shared with employees how their work impacts people with Marfan, Loeys-Dietz, and VEDS. Terumo Aortic has supported several Foundation events, including the 2025 South Florida Walk for Victory and the 2024 International Symposium in London. The company has committed to being a global sponsor for four key international Foundation events in 2026.

 Erik Pomp, CEO, Terumo Aortic; Victoria Hilton, Marfan Trust, UK; Eileen Novins; Tarik Pacuka, Chief Commercial Officer, Terumo Aortic

Fifth Annual Spanish-Language Summit Information and Support on Marfan, Loeys-Dietz, VEDS, and Related Conditions

Once again, the Foundation along with our Global Champion Sponsor, Terumo Aortic, will host this free virtual educational day for the Spanish speaking community on Saturday, January 24, 2026 . Medical experts will discuss a variety of topics, including access to care. Watch for details and registration coming soon at Marfan.org/CumbreEspanol .

Fall 2025 13