Connective Issues Fall 2025

Welcome New and Returning Volunteer Leaders Professional Advisory Board

The Foundation is pleased to welcome several new and returning members to our Professional Advisory Board and Board of Directors. These leaders bring a wide range of medical and lived experience and commitment to advancing our mission. Their guidance will help strengthen our programs, expand our reach, and ensure we continue providing vital resources to support individuals and families living with Marfan, Loeys-Dietz, VEDS, and related conditions. View the Foundation leadership making an impact at Marfan.org/team .

James H. Black, III, MD Professor of Surgery, Johns Hopkins Medicine

Ismail EI-Hamamsy, MD, PhD Professor of Surgery, Mount Sinai Health System

Anthony Guerrerio, MD, PhD Associate Professor of Pediatrics, Johns Hopkins Medicine

Pamela Guerrerio, MD, PhD Chief, Laboratory of Allergic Diseases, Chief, Food Allergy

Research Section, National Institute of Allergy and Infectious Diseases

Board of Directors & Advisors

“The Marfan Foundation is fortunate to have a dedicated group of physicians serving on its Professional Advisory Board and a passionate and mission-oriented Board of Directors. We are thrilled to have these new members join our volunteer leadership groups. Our community is blessed to have them.” ~Board Chair Bert Medina

Karen Murray Board Member

Alix McLean Jennings Board Member

Sofia De la Garza Board Advisor

Loeys-Dietz Syndrome Foundation Welcomes New Steering Committee Members LDSF Steering Committee members provide strategic guidance, community representation, awareness and outreach, and fundraising support. View all LDSF leadership LoeysDietz.org/about-ldsf .

Diane Rich, PT, DPT

Kathleen Dreissen

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Marfan.org