Connective Issues - Fall 2019


On Friday, July 12, the Foundation announced the Ensure Access campaign, a new campaign that is shaping the future of our Annual Conference. During the Annual Conference, $28,500 was raised toward the $1 million goal that will support Conference scholarships for another generation, bringing the current total to $900,408. Those who have attended conferences in the past know the impact of learning, laughing, and sharing as a community of people that knows first-hand about life with a genetic aortic condition. Despite the value of this experience, many people are not able to attend due to financial limitations. Over the years, several scholarship funds have assisted individuals and families that need support in attending the Annual Conference. The Ensure Access campaign will add to those funds and provide scholarship support for the next fifteen years or more. With the community’s help, we will ensure access for thousands of individuals so that more people can benefit from the life-enhancing and life-saving impact of the Annual Conference.

p Annual Conference is a life-changing experience for individuals and families of all ages who are living with Marfan syndrome and related conditions. Participants can learn from leading medical experts and connect with others who are on the same medical journey.

q (L-R) Ensure Access Chair Patricia McCabe with Lindsey and Ben Weisman, and Michael Weamer, the Foundation CEO, at the conclusion of the 2019 Annual Conference. In total, 142 conference attendees made donations to the Ensure Access Campaign. A challenge matching gift from the Weismans brought the total to $28,500.


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