Connective Issues - Fall 2019

FROM RECIPIENT TO DONOR

Mike and Sundie Scribner were the first people to donate to the Ensure Access campaign after it was announced at the Conference Welcome Dinner. This was Mike and his mom’s third Conference, and they didn’t miss a beat in deciding they wanted to contribute to Ensure Access. “Our first Conference changed our lives,” said Mike. “And we were blessed to receive scholarships that ensured our access.” For Mike and Sundie, Conference has been about much more than learning – it’s about “the invaluable experience of being surrounded by individuals who know exactly what you’re going through,” said Mike. And that is why this mom and son couldn’t wait to pay it forward. “We want each individual affected by Marfan or a related genetic aortic condition to get to Conference and realize that, for as long as they live, they are now part of a family,” said Mike. “That family is dedicated to answering every question, putting to rest every concern, and staying

Photo courtesy of Mike Scribner p (L-R) Mike and Sundie Scribner, pictured here with Jamie Scribner, were the first Annual Conference participants to contribute to the Ensure Access Campaign because they want to be sure this experience is available to anyone who seeks it in the future.

dedicated to them and their journey.” Mike and Sundie’s contribution was a gift from the heart. The average donation amount at Conference was $35, which may not seem like a lot in the face of a $1 million goal, but it is a lot when you know that every dollar will work to change someone’s

life each year, for years to come. Mike points to the Foundation’s tagline - Know the Signs, Fight for Victory - in encouraging everyone to get involved. “A contribution, no matter the amount, will help others ‘know’ and ‘fight’ for many years to come.”

Find out more about

how you can help Ensure Access at Marfan.org/ ensureaccess

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Fall 2019