The Marfan Foundation Annual Report 2021

X OUR MISSION The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. X OUR VISION A world in which everyone with genetic aortic and vascular conditions can live their best life.

TOGETHER, WE ARE FIGHTING FOR VICTORY

ON THE COVER: Elliott Bobbe, of Kansas City, was diagnosed with Marfan at the age of three. His mom, Nikki, says, “The Foundation has been a significant resource in teaching and guiding us since Elliott was diagnosed.”

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