Directions Spring 2020

Tennessee Chapter

Virginia Chapter

2019 NashvilleWalk-n-Roll The 5th Annual Nashville Walk-n-Roll took place on October 20, 2019, at the Centennial Park in Nashville, TN. The event once again brought together many local families and friends that were connected through the SMA community. The walk included fun for everyone with a DJ, games, and pumpkin painting. The event raised $19,711 ! A special thank you to Kayla and Gary Harbin and their family and friends for helping make this event possible! 2nd Annual Tennessee Newborn Screening Chili Cookoff Thank you to Hilary Fryman and the Newborn Screening Coalition for their hard work at the 2nd Annual Tennessee Newborn Screening Chili Cookoff. The event was held on September 11, 2019 and raised $355 for Cure SMA. Chapter Update Thank you to Jim Ferry for his involvement with the Vir- ginia Chapter over the past few years. Jim played a helpful role in getting the Virginia Chapter started to connect and support other SMA families in Virginia and was inspired to be a part of the leadership team by his granddaughter, Addison Kuester. Best wishes to Jim and his family as he retires from his role with the chapter. 5 Years

2019 Virginia ChapterWalk-n-Roll The 2019Virginia ChapterWalk-n-Roll was held on October 19, 2019, at Gar-FieldHigh School inWoodbridge, VA. More than 150 participants came together to raise over $18,000 ! It was a fun-filled day with an incredible raffle organized by Debbi Schaefer, face painting, outdoor games, and a DJ. Thank you to the incredible sponsors and teams for their continued support! A special thank you to our Virginia Chapter Leaders for helpingmake this event success: Kyle Derkowski, Laura Derkowski, and Debra Schafer.

5 Years

Tina Lane Events LLC Tina Lane Events located in Lynchburg, VA, donated a portion of their profits, totaling $1,200 , to Cure SMA. Thank you to Tina Lane Events for their support in continuing Cure SMA’s mission.

2019 Virtual Jogging for Joshua The 2019 Cure SMA Jogging for Joshua participated in a letter writing campaign this year. The event was a success, raising more than $3,000 for Cure SMA. Thank you to Bayley and Nathan for their hard work and dedication in bringing the Hampton Roads community together for this event in memory of their son, Joshua. Thank you, Bayley and Nathan, for rallying together friends and family, and to everyone for your support and generosity in memory of Joshua!

Note: The amounts raised and shown are totals as of April 30, 2020 and may differ from current fundraising totals by the time you get this newsletter.

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DIRECTIONS | SPRING 2020

EVENTS RECAP