Directions Spring 2020

Leaf Invitational Benefiting Cure SMA On September 11, 2019, Leaf Communications held the Leaf Invitational at the Monarch Beach Golf Links in Dana Point, CA. This year, Cure SMA was selected as the charity beneficiary of the tournament, which raised $40,000 . Special thanks to Dan Leaf and the Leaf Communications Team, Abbe Pell, and Nikki and Tony McIntosh for making this event a tremendous success.

2019 San DiegoWalk-n-Roll The 2ndAnnual San DiegoWalk-n-Roll took place on

November 3, 2019, at Liberty Station NTC Park in San Diego, CA. More than 140 participants and 11 teams gathered to raise over $15,000 ! The day included arts and crafts, lawn games, a petting zoo, photo booth, ice cream truck, and a two-mile walk around beautiful NTC Park. A big thank you to our event organizers, Brittany Sattari, Tara Hahn, andAutumn and RickkMontoya, for all the hard work tomake this event a success!

Capital Region Chapter

Honoring Alexandra Nina Meigs’ 12th Birthday

Each year, Andrea and John Meigs from Los Angeles, CA, honor the life of their beautiful daughter, Alexandra, by raising money for Cure SMA to commemorate her birthday. This year, in celebration of Alexandra’s 12th birthday, the Meigs Family raised $22,000 – bringing their total contribution since 2008 to more than $166,700. John and Andrea are determined to continue fundraising to support medical research and support services for families facing SMA. The Meigs’ Family wants to say thank you from the bottom of their hearts for remembering Alexandra’s birthday and to please continue to support Cure SMA’s mission in her honor. Ruby’s Diner Thank you to Lynn De Blasio, for hosting another successful Dine and Donate event at Ruby’s Diner, in memory of Jaimie Ramsey, on November 13, 2019. This partnership raised more than $1,290 for Cure SMA.

2019 Cure SMA 5K &Walk-n-Roll inMemory of Trooper Cunniff On September 28, 2019, more than 215 participants came out to Colonie Mohawk River Park, in Colonie, NY, to support Cure SMA. With help from the generous sponsors and donors, the event raised nearly $46,000 ! Congratulations to the top five fundraising teams for helping exceed the goal: Caleb’s Dream Team, Team Greyson, Team Chloe, Brooks Wolfe Pack, and TeamWhalen Chevrolet. Thank you to event organizers, Amy Cuniff-Bleau and Allie Wolfe, for their leadership and dedication!

Note: The amounts raised and shown are totals as of April 30, 2020 and may differ from current fundraising totals by the time you get this newsletter.

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DIRECTIONS | SPRING 2020

EVENTS RECAP