Directions Spring 2020

WA

ME

VT

MT

ND

OR

MN

NH

ID

NY

WI

SD

MA

MI

WY

RI

IA

PA

CT

NJ DE

NE

NV

OH

IN

UT

IL

WV

D.C. MD

CO

CA

VA

MO

KS

KY

NC

TN

AZ

OK

AR

SC

NM

GA

AL

MS

TX

LA

AK

FL

ADULTS AND CHILDREN

CHILDREN ONLY

ADULTS ONLY

HI

As of April 2020, the Cure SMA Care Center Network includes 20 centers that provide SMA multidisciplinary care and treatments, are geographically diverse, and diverse in the number of patients served.

• Advocate Children’s Hospital, Park Ridge, IL* • Arkansas Children’s Hospital, Little Rock, AR* • Boston Children’s Hospital, Boston, MA* • Children’s of Alabama, Birmingham, AL* • Children’s National,Washington, DC* • Columbia University, NewYork, NY • Connecticut Children’sMedical Center, Hartford, CT * • Duke UniversityMedical Center, Durham, NC* • Gillette Children’s SpecialtyHealthcare, St. Paul, MN* • Lucille Packard Children’s Hospital, Palo Alto, CA • Nemours Children’s Hospital, Orlando, FL

• Phoenix Children’s Hospital, Phoenix, AZ* • Seattle Children’s Hospital, Seattle,WA* • StanfordHealth, Palo Alto, CA • University of Missouri Health Care, Columbia, MO* • University of Rochester Medical Center, Rochester, NY* • University of Utah, Utah Program for Inherited Neuromuscular Disorders, Salt Lake City, UT* • University of Texas Southwestern/ Children’s Health, Dallas, TX* • Vanderbilt UniversityMedical Center, Nashville, TN • Yale Pediatric Neuromuscular Disorder Clinic, NewHaven, CT*

*Centers integrated into SMA Clinical Data Registry

The SMA Care Center Network empowers families and healthcare providers to collaborate by connecting centers to one another and utilizing a united SMA registry to share information.

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DIRECTIONS | SPRING 2020

UPDATES