Directions Spring 2020

T a b l e o f Con t en t s

L e t t e r f r o m K e n n e t h

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As we entered 2020—ready to launch into a new year of Walk-n-Rolls, Summits of Strength, and the Annual SMA Conference back in Orlando—no one could have imagined what the world was about to face and how our lives would be changed. However, despite these rapid and unexpected changes, the SMA Community has once again demonstrated its strength. In quick order, Cure SMA was able to: distribute thousands of COVID-19 Support Packages and Financial Support Gift Cards to homes across the U.S.; offer a constant stream of information, resources, and advocacy materials for the community to use when navigating the uncertain times; and pivot our many support and fundraising programs to be offered virtually. While launching these new programs, Cure SMA has also kept our funding and continued our focus on SMA research and clinical care needs. In April, we announced $1.1 million in research funding for seven (7) new research grants, and we now have 20 Cure SMA Care Centers contracted into our network. Thank you for all of the support from the community and sponsors, as we would not be able to provide the resources and programs we are today without you or your continued commitment.

Community Mailbag

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Guest Post

Community Spotlights

Original Articles

Shared Articles

Cure SMA Updates

Event Updates

Kenneth Hobby President

Endurance Updates

The production of this newsletter was supported by a grant from Avexis.

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DIRECTIONS | SPRING 2020

WELCOME