Connective Issues Winter 2025

YOU CAN EXPECT ★ General Session ★ Welcome Dinner & Awards Ceremony ★ Creating Connections Luncheon ★ 40 th Celebration & Victory Party ★ Creating Connections Mixer COMETO ✓ Connect with others like you ✓ Have direct contact with expert medical professionals ✓ Learn more about living with a genetic aortic and vascular condition ✓ Have a great time and make lasting memories!

July 10-13, 2025

Get Ready for to Celebrate at the Marfan Foundation's 40 th Conference in Atlanta! Details and Registration Coming in March We can't wait to see you at our in-person Conference and Health Fair, July 10 to July 13, in association with Children's Healthcare of Atlanta (CHOA) and Emory Healthcare. Plan for three days of medical and well-being workshops at the

Hyatt Regency Atlanta, 265 Peachtree Road NE. There will be special programming for kids and teens with fun activities too! The Health Fair testing will take place on July 10 with evaluations on July 11 at CHOA’s Center for Advanced Pediatrics. Conference kicks o ff the evening of July 11 and extends through Sunday early afternoon. Scholarships will be available.

FunFact: About half of attendees at our previous two in-person conferences were first-time participants.

Plan Now for Camp Victory 2025 Camp Victory is an amazing time for both kids and families. This year, our July 13-18 camp for kids in Georgia will be held right after Conference so kids can continue building friendships in an exciting and safe outdoor environment. A bus will be available to shuttle campers for a one-hour drive from Conference to the camp. Watch for details coming soon! Registration Coming Early 2025

Camp Victory for Kids  July 13-18: Camp Twin Lakes, Winder, GA  July 27-August 1: Sierra Nevada Journeys, Portola, CA CampVictory for Families  September 19-21: Camp Twin Lakes, Winder, GA  October 24-26: Pali Retreat, Running Springs, CA “Camp Victory is such a special experience for kids with vascular conditions and their siblings! My kids have participated two years in a row, and it is their favorite thing of summer!” ~Katherine Dowdney Come after Conference!

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Winter 2025