Connective Issues Winter 2024

WE REMEMBER AND HONOR We are grateful to our members and friends who made contributions in memory of, or in honor of, the following individuals between August 11, 2023 – November 30, 2023. These donations support our programs and services that create a brighter future for all those living with Marfan, Loeys-Dietz, VEDS, and related conditions. Donations to Walk for Victory are not included. If you would like to remember or honor someone special, please visit Marfan.org/donate . DONATIONS IN HONOR & MEMORY

INHONOROF

Anne Newman Andrew Nikithser Cathleen Nilles Michael Nygaard

Sinclair Li Sydney Lerman MaryLobo Micah Lupason Georgia Mace Isabella Marin Grant Martin Taborski McClellen Caroline McNeill

Brian Barker Kelly Barnes TJBarulli Scott Bergkamp Je ff Berkowitz JohnBerry Christopher Blum Michael Brandt David Braverman Carol Brennan Jennnifer Bu ff one

Richard Hill MaxHommel JohnHoran Dwight Hurst Olasupo Fowowe, II Gayle Johnston

Kristen Anderson Joseph Ashworth Angelo Asimakopoulos Filip Avramovic Stefano Bagnato Caroline & Jennie Bange Huggie Bear

Daniel Miriti Pacheco Christopher Paulsen Sunny Pellone Roberta Pfleging William Polis Matthew Powell Michael Reading Briley Reiland Ann Reinking Jadzia Renaud Jonathan Reyes Shirley Rigney Ilene Roberts Linda Rohrbaugh Pam Scanlon David Schettler Justin Scoggin Lucy Anna Sellin Jeremy Semano ff AvaShaw Gurcharan Singh

Nate Jones Sarah Jones Michael Jordan Je ff Bullis Jr Homer DeNeal Ailstock, Jr. Guy J. Comeaux, Jr. Eleni D. Kafantaris MaryKau ff man Bruce Klein TomKor ff John Krause Patrick Kremer Darryl Langshaw Brian Laughman Alexa "Lexi" Lawrence Milan Lazorcik Shauna Gayle Lee Jack Lemmer MaryLobo Anthony Lucido

Ricardo Belchior Debbie Berkowitz JackBish Izaak Boeglin Sebastian Brady David Braverman Dr. Alan & Rebecca Braverman Beth Brobst Austin Carlilse Huxley Clark

Myla Mickschl Jess Millburn Danny Murphy Christy Nath

Brody Bullock Eileen Burchett LeahBurke Paul J. Burke, III Carmine Calisi Jorge Alberto Castellanos SarahCayo Aileen Cheng Steven Ciccariello Joseph, Gloria, Joe, & William Colavito Jordan Myles Colon Richard Coren George Covington

Joseph Neustadt Theresa Newton Jim Northcutt Noah Padilla Elizabeth, Teddy, & Ford Petty Kendall Podsen AnnePower Amanda Rivera Alison Robinson FrankRoss Justin Scoggin Sondra Scott Jeremy Semano ff LillyShaw Evan Smolen Robert Steinbach Family Will Stubbs Larry Torode AnnieToy Kate Van Middlesworth Alexandra Weygand William Westmoreland The Wettero ff Family Connor Wilson Katie Wright Heather Young Virginia S. Anderson Katherine Anderson-Nix Chris Archevald Angelo Asimakopoulos Wayne Ayscue Anita "Nikki" Bagnell The Pullins Family James Richardson

Princess Aurora Clark Dani Beth Clements Gram and Papa Cooper Sofia Maria De La Garza Abelardo DeAnda James Dickey The Doehring Family Dimitrios Donavos The Feinstein Family

CJ D'Angelo Scott Daniel Graham DiMartino J. Doehring Karen Dragon Paul East Jay Elliott Sean Elmore Michael Enbar Beverly Feinstein Eric Fitzgerald Alyssa Flaherty EllenFord Brian Gabel JustinGee Brian Joseph Gilmore KevinGray Andrew Gross Gabi Guaipatin Ken Hammond Montell Hammond Michael Hansen

John Snyder Cari Spencer Ethel Spieker

RudyLuna Frank Marin

Robin Flaherty Kevin Forno ff Heidi Green Isabella Green Jack Guglielmo Toby Hamilton ArloHaren Lucy Henderson Jessi Henter Michael Henter

Casey Sprouse Aleesha Steele Grandpa Bob Steinbach Kimberly Stern Margaret Chaney-Stolle Carrie & Will Stubbs Clara Swarts Luke Terrell John Torode Larry Torode Annie Yee Chun Toy Luke Wagner Wendy Weiss Alana Wesley Ronald Westcott Douglas Marshall Whidden HenryWied

Norman Martin Albert Matsuura

Erica Mayton Joey Mazzuca James Daniel Meckler Kimberly Merkel Richard Mitchell TomMiyake John Monroe Luis Daniel Rodriguez Montesino HuckMoore Patricia Moran Sandy Morris Pam Moultrup Nancy Movshin Donna Mullins Ilana Mysior Lauren Bates Naddy Joe Neustadt William J. Morin Andrew Morrell

Kelley Horan Luke Hosking Beckett Hotchkiss Princess Huxley Lucy Jane Jerrod Jung Dawn Knowles SaraKyle Reeves, Grant, & Jen Olson EmilyLake Darryl & Miyla Langshaw Jean Francois Lavoie

IN MEMORY OF

Averie Williams David Williams Nina Wilson TomYasick Reut Zokovsky

Zara Harding Chris Heaney Michael Henter

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Winter 2024