Connective Issues Winter 2024

Make plans to join us at one of these upcoming walks. More dates and locations are being added so be sure to check the website at Marfan.org/walk . ★ Jan. 28 – South Florida (Hollywood) ★ Feb. 3 – Southern California (Costa Mesa) WALKFOR VICTORY EVENTS

Walk for Victory is a great way to connect with your community in a fun, casual environment. People of all physical abilities are welcome. We focus on gathering to make new friends, deepen existing relationships, and chat with medical experts – all while celebrating our community and raising critical funds to support our mission.

★ May 19 – Denver, CO ★ June 1 – Boston, MA ★ June8 – Chicago, IL ★ June8 – Portland, OR ★ June 15 – Milwaukee, WI ★ June 15 – Philadelphia, PA ★ June22 – Des Moines, IA ★ June22 – Virtual Global Walk

★ March2 – Houston, TX ★ March3 – Phoenix, AZ ★ April 20 – Raleigh, NC ★ May4 – Northern California (Aptos) ★ May 18 – Pittsburgh, PA

With hearts united in caring, 125 members of our Foundation community came together on November 4 with two missions: to raise awareness and funds for those living with genetic aortic and vascular conditions and to show solidarity for those touched by last spring’s tragic mass shooting at The Covenant School. “In the face of tragedy, our Nashville-area community demonstrated resilience, unity, and a commitment to making a positive impact,” said Dr. Clay Kaiser, Medical Chair for the rescheduled November Walk. “It was an uplifting day filled with love and kindness and a true appreciation for one another.” During the event, Meredith Mischner, director of development for our walk program, presented a special donation to the school on behalf of the Foundation. Our contribution was made in memory of Evelyn Dieckahus and in honor of the Dieckhaus family, including Dr. Michael Dieckhaus of Ascension Saint Thomas. Additionally, the donation honors Covenant student and Marfan Youth Ambassador, Jack Guglielmo. The funds were earmarked for health and wellness initiatives, aligning with the Foundation’s mission. Nashville WALKFOR VICTORY UPLIFTS COMMUNITY

 Meredith Mischner (right), Director of Development and Walk coordinator, presented Christy Foster (left), Director of Communications for The Covenant School, with a donation.

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