Connective Issues Winter 2023

Medical Research Webinar Series Continues in 2023 Research continues to advance the knowledge on Marfan, LDS, and VEDS, in part due to the ongoing support of the Foundation’s research grant program. Through our Medical Research Webinar Series, we are bringing the latest in research news to our community. This webinar series provides the latest diagnosis and treatment information from the researchers themselves. Upcoming presentations cover genetics with Dr. Hal Dietz, Johns Hopkins; lungs with Dr. Enid Neptune, Johns Hopkins; and eyes with Dr. Je ff erson Doyle, Johns Hopkins, and Dr. Deborah Vanderveen, Boston Children’s Hospital. Each webinar is one hour and features a live visual presentation, followed by a Q&A session. Webinars can be accessed on a desktop, laptop, smartphone, tablet, or web enabled device. Or, you can simply dial in by phone and listen. Once you register for each webinar, you will receive a personal link for logging on. If you are unable to listen live, all recordings are available on our YouTube channel following the presentation. To register for one of these webinars, visit Marfan.org/ resources/educational-opportunities. To view recordings of past webinars, please visit our YouTube channel. Be sure to subscribe for alerts on new recordings as they become available.

February .............Marfan Awareness Month February 5 .........Walk for Victory, S. Florida (Hollywood) February 25 ......Walk for Victory, S. California (Costa Mesa) March 5 ...............Walk for Victory, Phoenix, AZ March 11 ..............Heartworks St. Louis March 11 ..............Walk for Victory, Houston, TX March TBD .........Walk for Victory, Atlanta, GA April 1 ..................Walk for Victory, Nashville, TN April 21 ................HeartWorks Chicago April 22 ...............Walk for Victory, North Carolina (Raleigh) April 22 ...............Walk for Victory, Milwaukee, WI May 5-7 ...............Camp Victory for Families May 13 ..................Walk for Victory, N. California (Aptos) June 3 ..................Walk for Victory, Boston June 10 ................Walk for Victory, Pacific Northwest (Seattle) June 11 .................Walk for Victory, Chicago SAVE THE DATE for Upcoming Educational Events April 15, 2023: New York Symposium on Marfan, Loeys-Dietz, and VEDS New York Academy of Medicine LEARN & CONNECT Join us for one or more of our upcoming events.

Enid Neptune, MD – LUNGS – March 29, 2023 7:00 pm Eastern

Hal Dietz, MD – GENETICS – February 23, 2023 7:00 pm Eastern

May 6, 2023: Michigan Regional Symposium Ann Arbor, Michigan

July 13-16, 2023: Conference | Chicago, Illinois

Learn More and/or Register u Events: Marfan.org/events u Walk for Victory: Marfan.org/walk u Conferences & Symposia: Marfan.org/ educational-opportunities

Je ff erson Doyle, MD, PhD, and Deborah Vanderveen, MD – EYES – May 2, 2023 | 7:00 pm Eastern

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