Connective Issues Winter 2023

The Marfan Foundation and the GenTAC Alliance Push Research Collaborations Forward 

The GenTAC Alliance, a division of The Marfan Foundation, continues to put team science first and serve as a global educator for the community of physicians, scientists, and healthcare professionals focused on advancing care for all forms of genetic aortic and vascular conditions. The GenTAC Alliance accomplished much in the past year: • The Aortic Summit, part of the Foundation’s international research symposium, Science in Paris, focused on discussions of management controversies and di ff erences between country guidelines for these conditions and how these issues need to be addressed with outcome data. • Several GenTAC investigators received a multi center, multi-year, multi-million dollar grant from the LeDucq Foundation to investigate triggers for aortic dissection. The study begins in January 2023.

p Attendees attend the poster session at the 7 th GenTAC Aortic Summit, part of the Science in Paris meeting in late August

• GenTAC investigators compiled a compendium of registries for researchers to easily view the number of participants as well as certain clinical aspects so scientists can target registries with resources to answer specific study questions. This will appear on the new GenTAC website, which will relaunch in 2023. • Eight publications appeared in the March 2022 journal entitled Seminars in Vascular Surgery. These studies resulted from the Aortic Dissection Collaborative, a research initiative conducted by members of the Alliance. • GenTAC Working Group members held several educational webinars targeted to researchers and physicians. To learn more about GenTAC, please visit GenTACAlliance.org.

p Attendees joined a general session at the 7 th GenTAC Aortic Summit in Paris

11

Winter 2023