Connective Issues Winter 2017

PAB NEWS

PROFESSIONAL ADVISORY BOARD NEWS Heidy Connolly, MD, Mayo Clinic, is new chair

New Chair The Marfan Foundation is

In 2004, Dr. Girardi received the Hero with a Heart Award from The Marfan Foundation for his surgical expertise in the care of patients with Marfan syndrome and related disorders. In 2016, he was honored again at the Foundation’s Heartworks gala in New York as part of the Weill Cornell Medicine cardiac care team, along with Dr. Richard Devereux and Dr. Mary Roman. Dr. Girardi has also been honored with the Stephen Gold Award for Humanitarianism in Medicine, Il Leone di San Marco Award in Medicine, Coryell Prize in Internal Medicine, and more.

pleased to announce that Heidi Connolly, MD, is now the chair of its Professional Advisory Board. This board, which is comprised of the leading Marfan syndrome and related disorders clinicians and researchers from all over the U.S., provides the Foundation with professional expertise and oversight of all medical informa-

On The Move Dr. Duke Cameron, formerly the Cardiac Surgeon-in-Charge and James T. Dresher Sr. Professor of Surgery at Johns Hopkins Hospital, moves to Massachusetts General Hospital on February 1 as Co-Director of the Thoracic Aortic Center and Surgical Director of the Adult Congenital Heart Disease Program.

tion on the diagnosis and management of Marfan syndrome and related disorders. In addition, these doctors advise us on research opportunities and priorities. Dr. Connolly, who has served on the Professional Advisory Board since 2006, is a Professor of Medicine at the Mayo Clinic College of Medicine in Rochester, MN, and a Consultant in Cardiovascular Diseases at the Mayo Clinic. In addition, she is director of the Mayo Clinic’s Congenital Heart Center and Adult Congenital Heart Disease Clinic, serves as Vice-Chair for Education in the Department of Cardiovascular Diseases at Mayo Clinic, and is an active member of the Echocardiog- raphy Laboratory. Dr. Connolly established the Marfan Syn- drome and Thoracic Aorta Clinic at Mayo Clinic and served as its director until 2012. She played a leading role in our 2009 and 2016 annual conferences, which were hosted by Mayo Clinic. Dr. Connolly replaces Dr. Alan Braverman as Chair. Dr. Braverman remains as a valued member on the Professional Advisory Board.

Managing Your Condition Our Professional Advisory Board plays a critical role as they provide oversight to all the medical information we share with our community on Marfan syndrome and related disorders. This includes fact sheets on how these conditions are diagnosed and how various features are treated—heart and blood vessels, bones and joints, eye, lungs, skin, nervous system, and teeth. There are also fact

New Member Leonard N. Girardi, MD, Professor of Cardiothoracic Surgery in the Department of Cardiothoracic Surgery at Weill Cornell Medi- cine, has been named to our Professional Advisory Board. In addition to his clinical care, Dr. Girardi is committed to training the next generation of cardiothoracic surgeons. He is a member of numerous surgical

sheets on conditions related to Marfan syndrome, such as Loeys Dietz syndrome and Ehlers Danlos syndrome. The fact sheets can be down-loaded for free at our website, Marfan.org.

Just look for patient resources. Several of the fact sheets are also available in Spanish.

societies and has published extensively on multiple topics in cardiovascular and aneurysm surgery and has given many lectures at regional and national surgical meetings.

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