Connective Issues Winter 2014


WHAT IS VICTORY? Spending more time with family, finding a new Marfan friend, having hope, saving lives. These are a few of the ways people defined victory during the 2013 annual family conference when we revealed our new brand and tagline, “Know the signs. Fight for victory.” What does victory mean to you?

“Victory is to wake up every day, knowing that I am blessed to be alive, after an aortic dissection. Before that day, I had no idea what Marfan was. I know now. I am alive. That is victory for me.” – MAYRA KOHLER, FACEBOOK FAN

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