Connective Issues - Summer 2020

FIRST E 3 SUMMIT COMING THIS SUMMER Tuesday, August 25 – Saturday, September 12

As we look to the future, we know that your need for comprehensive, up-to-date medical and quality of life information continues. In fact, your questions may increase as the medical landscape changes. When it comes to dealing with Marfan, VEDS, Loeys-Dietz, and other genetic aortic conditions, you can continue to count on The Marfan Foundation. With this in mind, we asked ourselves what it would look like if we could create a virtual event that included the best experts in the world. The answer to that question is the E 3 Summit, powered by The Marfan Foundation and VASCERN, the European Reference Network. The E 3 International Summit: Educating, Empowering, and Enriching Our Community will take place Tuesday, August 25, through Saturday, September 12. Live online presentations and question and answer sessions with the world’s experts on Marfan, VEDS, Loeys- Dietz, and related conditions will be scheduled on weeknights and on two Saturdays.

In addition, mid-day presentations will be offered to accommodate other time zones, especially in Europe. To better meet the needs of people around the world, the Summit will include medical presentations in Spanish, Italian, French, and German. To complement the medical information, a selection of quality of life presentations will also be on the schedule. Opportunities for connecting with other people in the worldwide community will be available as well. What will you need to access this three-week summit? A device that can connect to the internet. That’s it! Everything from medical and quality of life presentations to live question and answer sessions with the experts and networking opportunities will be online. More information about specific programs will be coming soon, along with registration and scholarship details. This is a special opportunity to connect with medical experts and the genetic aortic community from around the world. Please mark your calendar now to join us for this incredible three-week event. Powered by The Marfan Foundation and VASCERN

AT HOME HEARTWORKS THE MARFAN FOUNDATION

HEARTWORKS AT HOME A SUCCESS The HeartWorks Gala had to move to our living rooms this year, but it was still a huge success! The event raised $115,000 to ensure continued research, resources, and support for the Marfan, VEDS, Loeys-Dietz, and related conditions community!

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Marfan.org