Connective Issues Spring/Summer 2026

WE REMEMBER AND HONOR We are grateful to our members and friends who made contributions in memory of, or in honor of, the following individuals between December 1, 2025 – March 31, 2026. Your donations support our programs and services that help empower people living with Marfan, Loeys-Dietz, VEDS, Stickler, and related conditions to thrive. Donations to Walk for Victory are not included. If you would like to remember or honor someone special, please visit Marfan.org/donate . DONATIONS IN HONOR & MEMORY

Farbstein Family Charitable Foundation Evan Feenstra Carson Fetting Allan Filler Carson Flanagan

Ava Kostick Nicole Kramer Jeremy Kravitz Patrick Joseph Kremer Todd Krueger Benjamin Kuehn Sara Kyle

Richard Coren Callie Cornely George Covington, Jr. Mickey Crabtree Blaise Martin Dafoe Mary Davis Lynn Dietz Graham DiMartino Kelly Dorgan Evelyn Ann Dostalik Michael Enbar Peggy Encinia Brother Esfandiarei William Feinstein Randall G. Ferguson Eric Fitzgerald Mark Fosdal Grace Friend Melodie K. Friesen Bryan Funk PJ Fusaro Mariana Garcia Matthew Garcia Julie Goodman Frances Graves Rosario Gregoire Randy Griffith Christina Grimes Col. John M. Grimshaw Andrew Gross Shawn Grunberger Gabi Guaipatin Linda Hacker Trenton Hall Sara Hansen Kennon Harrison Fred Hearn Richard D. Heim Shawn Heldt Vanessa Hernandez Aubrey Hilligoss Bilk Hollerman Max Hommel Kenneth Horcher David Hufnagle Scott Hunefeld Terri Hunter Dwight Hurst Eileen Ilberman Jason Jacobi Michael Lee Janowitz Ann Jarosz Christopher Jedda Kelsey Dresser Cynthia Dwyer Ryan Ellis

Dan Papke Susan Parker Zoe Patterson Violet Pekarek Molly Petersen Pamela Peterson Bill Polis Mike Powel Anne Power Elva Prohens Jim Prutow John Pumilia Grant Rambo Guidry Ramoin Joaquin Ramos River Reiner James Richardson Patrick O'Neill Riley Amanda Rivera Dani Rivers Melinda Rodriguez Leo & Sonya Roos Noa Russell Samantha Lucia Sanchez Emmir Daniell Sarip Ross Saunders Efrat Lifshitz Schwartz Carlee Schwartz Colt & Kayla Seaberg Zahrah Shahab Gurcharan Singh Spencer Skrzypiec Lauren Slack Megan Slack Evan Smolen Lucy Solove William Venson Spakes, Jr. Mila Stamer Marian Stoodley Philip Storace Leo Cole Strangstalien David Style Max Suarez Nicholas Sumberaz Amy Sumner Kadeem Swift, Jr. Matthew & Danyel Tacker Tammy and Tom Camden Tanner Lona Tanner Angels Taylor Melissa Taylor Colton Thomas Samantha Thomas Townes Turner Ana Villarruel Monique Voorn Adam Warren Lauren Wasserman Isabella “Bella” Welch Brayden Wesley

Alexandra Weygand MawMaw Whidden Johnny Whitehead, Jr. Sky & Auggie Whitehead Whitehead Family Henry Wied Isabella Margaret Williams Matthew Williams Connor Wilson Matthew Wiseman Mark Witt & Family Austin Wright Katie Wright Emma Yarbrough Heather Young IN MEMORY OF Virginia S. Anderson Cole Andress Anthony Arnerich Angelo Asimakopoulos Baby Carmelo Lisa Bailey Dennis Banh Jason Zajicek Cynthia Zarate Alexia Barnett Martha Bauer Scott Bergkamp Jeff Berkowitz Zane Betts Trevor Binns Jerri Lynn Bitar Michael Blake Luis Enrique Martinez Bolio Liliane Bouthillier Nicole Bouvatte Jeffrey Dean Bowman Gladys & Bernie Brady Michael Brandt Stephanie Brandt David Braverman Leonard Brinker Franklyn Brodsky John Henry Brown Jennifer Buffone Brody Bullock Leah Burke Josefina Cagigal Gabrielle Cannistraci John Capocciama Andie Carpenter Sarah Cayo Brooke Chapman Aileen Cheng Raymond John Chevallier

Fred Keesy Amanda Koscis Margaret McCabe Kristl

Joyce & Leslie Picker Isaac Pina

IN HONOR OF Joseph Aach All Marfan Folks Arche Family Anthony Newell Arnerich Caroline Arpin Tammy Asplund Filip Avramovic Joe Bailey Bailey Family Amber Baker Nora Leslie Baker Caroline Bange Curtis Bates Little Bear Hunter Beckholt Ricardo Belchior Emma Biggerstaff Larry Blake Jerry Bluestein Megan Boeglin John Bois Crystal Bonnichsen Lottie Boon Elizabeth Bostwick Bonnie Bowden Dr. Juan Bowen Dr. Alan & Rebecca Braverman Gina Broadbent Sean Broadbent Allison Brobst Avery Clark Huxley Clark Dani Beth Clements Steve Collins Carrie Lynne Cook Caitlyn Cooke Michael Crabtree Christian D'Angelo Sofía María De la Garza Andrea Dia Laura Dickson Lynn Diehl Ernie Dostalik Emerson & Sam Dowdney Joe Doyle Rahel E Gabriella Earnhart Sean Elmore Celina Emanuel Ellen England Lucas Escarcega Mitra Esfandiari Mary & Bill B Essers Beth Brobst John Brown Paul PJ Burke, III Catherine Bury Kathy Butvick Ann Marie Carrier

Carolyn Powell Matthew Powell Terry Preiss Caroline Prugh Raquel Ramos Erin Ramsey Jennifer Rankins Robert Rapado Joseph Rayman Ann Reinking Regan Remulla Jonathan Reyes Lis Rock Gloria Rodriguez Andy Ross

Julie Kurnitz Gene Kutner

Darryl Langshaw Jonathan Larson Kaylana Lasell Anthony "Tony" Laughman Brian Laughman Laurel Alexa Lawrence Denise Lee Mary Lobo Ben Lorenz Margaret Eddy Lucas Ashlyn Oi Ling Luk Lucas Luna Alan Mackey Jarvis Mahe Stephanie Mahnken Harold Joshua Makanoff Richard Makanoff Frank Marin Jack Lemmer Hyson Lewis Allyson Marisch Norman Martin Albert Matsuura Erica Mayton Scout McCauley Greg McKee Connor Metz Jon Mietz Winslow Mimnagh Luis Daniel Rodriguez Montesino Haley Monts Kaitlyn Morales Ash Morales Andrew Morrell Lauren Nady Jenny Neil Matthew Nelson Joseph Neustadt Anne Newman Phil Newsome Jon Niemi Cathleen Nilles Donna Novy Rodney Oberle Cheryl Ogonowski Sharon O'Malley Lucas Osuna Team Lucas #19 Osuna Daniel Miriti Pacheco Lucy Padilla Carmelo James Pappalardo Emma Parker Christopher Paulsen

Maia Fleener Noelle Flynn Faith Frazier

Monty Labelle Tomas Lagos Brian Lane David Larrick Anthony Laughman Dr. David Liang Heidi Leben Barbara, Jonathan, & Sydney Lerman Barbara & Robert Levy Sinclair Li Jean MacLeay Eleanor Magel Lubka Talulla Maher Dr. David Majdalany Dr. Chris Malaisrie Daniel Manning Marfan Foundation Community Isabella "Bella" Marin Grant Martin Genevieve Marvin Morgan Masterman Peyton Matthews Dean Maurer John Lorenz Josh Lowrey

Kristine Freeberg Meredith Freeberg Aidan Gareis Camisha & Julian Gates Raquel Gilliland Shane Glidden Heather Gooch Julie Ann Beard Goodman Andrew "Drew" Graves Isabella Green Roberto Guerra Jennifer Guico Landon Haddad Creasie Hairston Stella Hall Christian Hampton Harper Hancock

Kaylana Lee Ryan Carolyn San Paolo Rebekah Santiago John F Sattler Jim Savage Pam Scanlon William Selvitelle, Jr. Jeremy Semanoff Michael Serbousek Ava Shaw Michael Shaw George Fulton Sheehan Laura Siqueiros Marian Joy Stoodley John Gerald Sweeney Bridget Sweet Michelle Swindle Jason Theriault Kayley Tigges Kathleen Mary Timpe Mike Tomberlin Jacques van Kimmenaede Irina Volguina Sue Wakat Robert Walker Willa Hilton Walker Dolores Warnke Dylan Watkins Karen Weil Isabella "Bella" Welch Abel Tahirkheli Fred Taverner Luke Terrell

Jane Harris Shelley & Ty Hartman Stan Henkin

Rocco Hermogenes Andrew Hillebrecht

Bob Hiltunen Morgan Hines Dave Holden Jace Holmes

Karen Maxwell Gregory McKee Bert Medina Cannon Medina Adalynn Meyers Amelia Meyers Bailey Milburn Dr. Craig Miller Franklin Miller Michael Miller Macon & Tobie Mitchell Wally Mixsell MJ Family Madeline Moore Robbie Mudroch Karen Murray Eli Neisius Katy Nelson Theresa Newton Carter Nietrzeba Eileen Novins Vivian Oehme Collin O’Nuallain Floss O'Sullivan Samantha Ott Mike Oxman Vivi P Noah Padilla Bryleigh Mon Claire Moore

Ken Horcher Elenore Horn Beckett Hotchkiss Joyce Houston Debby Howard Zack Isoma Christian & Father Jefferies Gail Jehan Cassie Jennings

Sylvia Jinks Bill Johnson Kai Johnson

Kerry Johnson Cooper Jones Joanne Jordan

Dawn Wentz Valerie Wentz Alana Wesley

Tim Joyce Seth Jung Jill Kaeppel-Sheiner Caryn Kauffman Linda Kelly Kenneth "Doc" The KIK’n Crew Gabrielle Kiliman Jaelyn Kirby

Ronald Westcott Victor Willhoite Denise Winter

Sydney Jenkins Steven Jerkins Renee Jessup Evan Jesus Brian Jeter Kyle Jorda Michael Jordan Jerrod Jung

Vivian Yang Mike Yasick Tom Yasick Yasick Family

Steve Ciccariello Courtney Collom John Connolly Peggy Coppess Elaine Coren

Brady Klefman Dawn Knowles Amanda Kocsis

Rachel Eyassu Lindsay Fabri

Sunny Pellone Josefina Piape

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