Connective Issues Spring 2024

WE REMEMBER AND HONOR We are grateful to our members and friends who made contributions in memory of, or in honor of, the following individuals between December 1, 2023 – March 30, 2024. These donations support our programs and services that create a brighter future for all those living with Marfan, Loeys-Dietz, VEDS, and related conditions. Donations to Walk for Victory are not included. If you would like to remember or honor someone special, please visit Marfan.org/donate . DONATIONS IN HONOR & MEMORY

William Henry Floyd, IV Noelle Flynn David Golder

Claire Moore Janaan Moore Madeline Moore Lynda Moylan Robbie Mudroch Danny Murphy Christy Nath Phil Newsome Theresa Newton JonNiemi JohnNosta Kessler Ogden Reeves, Grant, & Jen Olson Dr. Kayla Pariser Victoria Pawar Denise Pentecost Jodi Pentecost JohnPerna Melissa Petrella Elizabeth Petty JohnPew Jameson Pitcher Ellen Podell Kendall Podsen Sophia Isabella Pollaro AnnePower Nicole Reiner River Reiner James Richardson Emilio & Xaeed Rico Amanda Rivera Ryan & Lindsey Rodarmer MaxRomero Merrick Ross Pete Schramm Carlee Schwartz Terence Seery Karen Marie Selvaggio LillyShaw Malakh Shrestha Spencer Skrzypiec Evan Smolen Amanda Sonquist Christopher Springer Mila Stamer Leo Strangstalien Jacki Sullivan Norma Surmon Vickie Suzanne Danyel & Matthew Tacker Brinley Taylor TeamJames Seth & Analise Tennant NickTeune The Professional Advisory Board Jason Theriault Tammy Thomas Samantha Thomas Kayley Tigges Jim Towns & Family NoahTran Nishani & Manisha Vakharia Erica & Matt Volna Brooke Pulliam Dr. Reed Pyeritz Guidry Ramoin Aubreye Reddell

Michael Weamer Rachael Weinberg GaryWeiss Alexandra Weygand Emily Wheeler HenryWied Averie Williams Sarah A. Williams Connor Wilson

Mary & Billy B. Essers Beverly Feinstein Daniel Fess

Ilana Mysior PaulaNeil Joseph Neustadt Cathleen Nilles Otto Nitschmann KatieNix Anythony Nocella Rodney Oberle Shirley Osman Daniel Miriti Pacheco Christopher Paulsen Cynthia Payne Sunny Pellone Delores Peterson Josefina Piape Jared Hunter Pinson Vicky Prager

INHONOROF

Nathan Adolf All Marfans Folks All My So California Walk Friends Cameron Allen Nadia Allmon Micah, Connor, & Audrey Amdur-Clark Brandy Andrews Caroline Arpin Angelo Asimakopoulos CelinaAu Filip Avramovic Christopher Baier Joe Bailey, Jr. Mary Bailey MarenBain NoraBaker Caroline Bange Charlotte Basurto-Olsen Curtis Bates Hunter Beckholt Ricardo Belchior Debbie Berkowitz Sydney Bitterman Jerry Bluestein Christopher Blum Elliott Bobbe Dr. Juan Bowen Oliver Bowra-Davis Braverman Family Cyle Burkhalter Quade Bywater Dr. Anthony Cafarelli & HoagTeam Austin Carlilse Emilee Chambers Avery Clark Kasie Clark Phillip Clark Dani Beth Clements LeoCole Judi Consigli Caitlyn Cooke Joanna Nicole Cordero Dominick & Cecelia Corso Heather Cottier Charlie Cowden CoxFamily Luayne & Derrick Crandall Michele Cripps Dr. Ralph Dacey Oliver Davis Sofia De la Garza Sofia Maria De la Garza Karen DeCoursey Earl Devaney Brianna DeVincentis Doehring Family Haley Dostalik LaceyDray Gabrielle Earnhart Callie Efurd Celina Emanuel

Heather Gooch Isabella Green Keegan Gregory Amy Grimshaw Hadley Gunn Creasie Hairston Connor Hajj Toby Hamilton Shelley Hartman RyanHealy Sherry Heldt Aaron Henry Lincoln Hervatin Carson Hester Jace Holmes JohnHoran Beckett Hotchkiss

Eric Fitzgerald Myron B. Ford

Olasupo Fowowe, III Raymond J. Frenz, Jr. Grace Friend BryanFunk Marlene Gallahan Julie Goodman Rachel Goodman Andrew Gross Shawn Grunberger Roberto Guerra Linda Hacker SaraHall Jane Harris Rod Haskins Brad Havard Christine Hawley FredHearn Richard D. Heim Marilyn Higdon Willa Hilton Walker MaxHommel David Hufnagle Tonee' Huggins Eileen Ilberman Mike Ireton M ittens Ann Dolesh Jarosz Michael Jensen Renee Jessup Bill Johnson Carl & Helen Jones Michael Jordan Jerrod Jung Jill Keeper-Sheiner

Anna Witiuk Katie Wright MJYang Steph Yasick Heather Young Ashley Zarate Cynthia Zarate

IN MEMORY OF

Frappa Quandt Michael Reading Lucinda Reeves Briley Reiland Ann Reinking TomReis

Homer Ailstock Dr. Jamal Alkhatib Virginia S. Anderson Sherri Asche Wayne Ayscue David Barry Charlotte Mary Ruth E. Basurto-Olsen Lauren Bates Naddy

Chris Ikonohou Dayna Isensee Mike "Mick" Jackson Christian D’Angelo Je ff ries Gail Jehan Cassie Jennings Alix McLean Jennings Ivy Johnson Kai Johnson Christian Michael Jones TimJoyce CarynKau ff man Brady Klefman Dawn Knowles Matthew Korochik Kozel Family Nicole Kramer Rebecca & Sarah Kryger Daniel Keyes Jaelyn Kirby

Regan Remulla Jonathan Reyes David Ricca Daniel, Shirley, Andrew & Janet Rigney Lisa Ritell-Milton Brock Robertson Patricia Roberson Luis Daniel Rodriguez Montesino

Michael Beardslee Julie Beauchamp Scott Bergkamp

Je ff Berkowitz Jerri Lynn Bitar JackBlack David Braverman Leonard Pennington "Penn" & Jan Broecker Jeanna Brown Ayers Louie Bryant Jennifer Bu ff one Brody Bullock LeahBurke Parker Burleson Gabrielle Cannistraci Dennis Capio Jorge Alberto Castellanos SarahCayo Aileen Cheng

Maryann Roney Claudia Roper Michael Rosales Pam Scanlon Jerry Schultz Spencer Sellas William Selvitelle Jeremy Semano ff AvaShaw Michael Shaw Leonard Sheiner Brian Singletary Libby Sparks

Julie Kurnitz Gene Kutner James "Ron" Laccabue Darryl Langshaw Jonathan Larson David & Brothers Laufer Jack Laufer Alexa "Lexi" Lawrence April Leaman RoyLee Jack Lemmer Sandy Lichtenstein Melissa George Lindland MaryLobo RudyLuna Stephanie Mahnken Norma, Harold, Joshua, David, & Richard Makano ff Debbie Marcus Frank Marin

BenKuehn FoxyKusin SaraKyle Dr. Ronald V. Lacro Jacobi La ff erty Tomas Lagos Jane Laufer Tomas Lagos Lee Sydney Lerman Sinclair Li Dr. David Liang Efrat Lifshitz

Casey Sprouse Kimberly Stern Norma Surmon Michelle & Bodhi Swindle Tommy D. Tant Lauren Ovelgonne Tenney Luke Terrell Jason C. Theriault To All Those Lost Tony & Annie Toy Angela Volan Jennifer Volpe Emory Wakat Robert Walker Dr. Robert B. Wallace Dolores Walsh Laura Wascha Carolyn Weinhold Alana Wesley Cheryl Williams Nina Wilson Denise Winter Martin Wolpers Christopher Yasick Elizabeth Steady Young Bart Zybura

Priscilla Ciccarello Steven Ciccariello Jordan Myles Colon Nancy Conger Chyla Connell Richard Coren Callie Cornely Heather Cottier George Covington, Jr. Blaise Martin Dafoe Lawrence D'Apice DougDavis Sherry Davis Dennis DeCoursey John DeMasi Ralph Devito Beth Dillon Graham DiMartino J. Doehring Je ff rey Duchaineau

Daniel Lugano Jean MacLeay Eleanor Magel-Lubka Talulla Maher Isabella "Bella" Marin Grant Martin Peri Masterman-Graybill

Debbie Martin Norman Martin Albert Matsuura Erica Mayton Scout McCauley Margaret Meagher James Daniel Meckler Kimberly Merkel Conner Metz Yvonne Micholas HuckMoore

Peyton Matthews Patricia McCabe Taborski McClellen Ainsley McFarland Bert Medina Cannon Medina Camila Melero Desiree Mendoza Charlene Meyers Bailey Milburn Meredith Mischner Bryleigh Mons

Evan Esparza Rahel Eyassu Tommy Farley Tyler Farley Feinstein Family Eric Filipkowski Mia Fleener

Clifton Durand Gertrude Elliot AnnaEllis

George Wang Brandy Ward Adam Warren Stacey Watson

Michael Enbar Peggy Encinia Everett William Erwin, Sr.

Andrew Morrell Pam Moultrup

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Spring 2024