Connective Issues Spring 2024

Adventure* Fun* Friendship Register for Camp Victory 2024! Whether it is the warmth of the fire, the accomplishments of trying new activities, or staying up at night sharing stories, a camp experience is like none other. Come make lasting memories and friendships at the Foundation’s Camp Victory! Our camps o ff er community members a safe environment to learn independence, have fun, and expand horizons with medical supervision and accessibility. This year, we will be hosting Camp Victory for Kids and Camp Victory for Families in Georgia and California, providing opportunities for kids, teens, and families to gather from across the country and beyond. Camp Victory for Kids is designed specifically for children ages 7-16 with Marfan, VEDS, Loeys Dietz, and other related genetic aortic and vascular conditions. Siblings are welcome, too. Camp Victory for Families is designed for the entire family (children ages five and older and adults) to have fun, enjoy activities, and meet other families with similar experiences. “We love Camp Victory, and all the sta ff and counselors,” said Caitlin, whose son, Rowan, has attended Camp Victory for Kids in Georgia for the past several years. “We have never had a concern leaving our son who has Marfan syndrome even though we live states away. We can't wait to hear his stories and love the connections he makes with kids all over the country.” For more information about all camps, including important deadlines, answers to the most common questions, scholarship applications, and more, visit our camp web page, Marfan.org/campvictory .

“I love Camp Victory! Everyone is so supportive, the food is amazing, and it’s so much fun! My favorite activities are archery and swimming. I made so many friends there. I can’t wait to goback.” ~Rowan

Georgia Camps Camp Victory for Kids

★ July 21-26: Camp Twin Lakes, Winder, GA Kids camp registration deadline is June 23 Camp Victory for Families ★ Sept. 20-22: Camp Twin Lakes, Winder, GA Family camp registration deadline is Aug. 23 California Camps Camp Victory for Kids ★ Aug. 4-9: Sierra Nevada Journeys, Portola, CA Kids camp registration deadline is July 7 Camp Victory for Families ★ Nov. 8-10: Pali Retreat, Running Springs, CA Family camp registration deadline is Oct. 11

Scholarships are available. Space at all camps is limited, and registration is on a first-come, first-served basis. Register today! See what camp has to o ff er!

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Marfan.org