Connective Issues Spring 2019

TOGETHER IN HOUSTON

New Kids on the Block Katherine Doehring and her family joined the Walk for the first time in 2019 as a way to find mutual support with other families in the area. The family had recently lost a loved one due to Loeys Dietz-related complications and were learning to navigate their son's new diagnosis. Katherine espe- cially wanted to connect with other spouses and moms who could relate. Though they were overwhelmed with support from family and friends, the Doehrings were anxious about the emotions that could arise at the Walk. “It turned out that the day was wonderful,” said Katherine. “We met

families in our stage of life who have a lot in common with us, which is especially important when you have really intense things in your life.” The Walk for Victory has always been about awareness, supporting individ- uals and families who are affected by Marfan and related conditions, and building community. This Walk met all those goals for Katherine and her Walk team, the Doehring Dreamers. “We thought we’d take a stab at fundraising and set a $5,000 goal. People really rallied around us and we were astonished that our little team raised $10,000,” she said. “While we wanted to be connected with others, we also wanted to support the Foun- dation, including its research program. It’s the only way we’ll be able to in- crease the quality of life for people

affected by Marfan, Loeys Dietz, and related conditions, help reduce the number of surgeries needed, and improve the safety of surgeries.” For both the Efurd family and the Doehring family, the day was a wonderful success. The Walk helped them connect with others, create awareness, and raise funds for some- thing that is very meaningful to them. “It was everything I’d hoped for,” said Katherine Doehring. And that’s what Walk for Victory is all about.

In 2019-2020, the Foundation will hold Walks in 24 cities across the country. Look for a Walk near you on our website at Marfan.org/Walk .

q The Doehring Dreamers raised $10,000 to support the Foundation’s programs and services.

Photo courtesy of Anahi Gonzalez

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