Connective Issues Spring 2019

The Marfan and related conditions community stepped up to spread awareness during Marfan Awareness Month , 2019. February was full of your stories, photos, fundraisers, and events. Your social media posts alone reached an estimated 400,000 people . You proved that #AwarenessFeelsGood time and again, and the effects continue to ripple outward while creating a brighter future for everyone living with Marfan and the related conditions.

u Langston Galloway , of the NBA Detroit Pistons, paid tribute to his friend Owen Gray, who has Marfan, by featuring Marfan

awareness on his sneakers (LG Kicks by Q4 Sports) in a game in February. q Christi Nath and her husband, Rahil , were among thousands who spread awareness on Facebook, using the special Marfan Awareness Month profile frame.

t Skyler Glassford , 4, of Canada, who was diagnosed with Marfan two years ago, put her love of painting to work for Marfan Awareness Month. She painted rocks, birdhouses, and canvases, and held a Facebook raffle for them, raising money to help people learn about the signs of Marfan. u Penny Cooper Jones, w ho is t he Food & Beverages Manager at the Nopsi Hotel in New Orleans, and has Marfan, created a special drink for Marfan Awareness Month. A dollar from each drink ordered that month was donated to the Foundation, with a matching donation from Tito's Vodka.

All photos this page courtesy of Marfan community

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