Connective Issues Spring 2019

Paula Leroy Susan Leshen We are grateful to our members and friends who have made contributions in memory of, or in honor of, the following individuals between December 4, 2018, and April 5, 2019. These donations are fully appreciated and support our programs and services that create a brighter future for all those living with Marfan syndrome and related conditions. Donations to Walk for Victory are not included. WE REMEMBER AND HONOR Ian Lesko Sinclair Li

Suzanne Bowman Alan Braverman Rebecca Braverman Josie Brundage Bryan Butvick Austin Carlile Kerry Cogen Leo Cole Imogene Combs Penny Cooper-jones Michele Cripps Dusti Decker James Dickey Hal Dietz Brie Edwards Andy James Elam Beverly Feinstein Jennifer Fiedler Michael Fischbein William Floyd Noelle Flynn Daniel Friedrichs Judy Gibaldi Skyler Glassford Robert Golden Heather Gooch Anna Gould Brad Greene Marybeth Greene Marla Greves Scott Griebel Creasie Hairston Connor Hajj Evan Haley Sherry Heldt Forrest Hendricks Rocco Hermogenes Jon-Aaron House Thomas Howard Billy Essers Mary Essers Patricia Estrada Randy Falco Nina Fanara

Gary Lloyd Larry Lonas Janice Lynch Kathy Magee Lulu Maher Sara Maher

Donations In Memory Of Carol, Adrian, and Elias Adame Kaitlyn Anthony

Christina Hasel Jesse Heck Richard Heim Robbie Holland David Hufnagle Dwight Hurst Eileen Ilberman Jeff Izzo Ann Jarosz Kai Johnson L. Gail Johnson William Joynt Kenneth Kelly Teresa Kerr Marc Knell Paul Koester Carmela Kolman Julie Kurnitz William Kutz James Ludwig

David Pfirrman Eldridge Phillips Lisa Pikul Frank Pomoa Ginger Preiss Briley Reiland Thomas Reis Andrew Rigney Janet Rigney Brock Robertson Gabrielle Ruelos Allan Ruth Carol Ruth David Ruth Marilyn Ruth Judith Sessler George Sheehan Mark Silver

Barbara Makanoff Harold Makanoff Judy Martin Morgan Masterman Peri Masterman-Graybill Scout Mccauley Chase McKey Bert Medina Kenneth Meidl Ellen Meiner

Pauline Baker Barbara Bales Kai Belcher Larry Blansett

Madison Boudreaux George Bourgeois

Marissa Broady Jennifer Buffone Jerry and George Butler Gabrielle Cannistraci Charles Carter Joseph Casarole Sarah Cayo Jack Chevallier Susan Chov

Catherine Miller Madeline Moore Lucy Morehead Karen Murray Delanna Muse

Alex Novak Ellie Novak Julie Perlin Brady Relias Kade Relias

Christina Sims Barbara Smith Heather Smith Timothy James Smith Gaynor Solomon Casey Sprouse Harvey Sykes Rosalie Szarkowski Tommy Tant James Jonathan Taylor

Eileen Cieslik Callie Cornely Helen Rae Cowell Carol Crews Daniel Crowley

Alexandrea Macaluso Virginia MacEachran Nancy Maines Hathaway David Makanoff

Mary Rodriguez Elizabeth Roos

Peter Roos Pam Rubin Ron Rubin

John deBlecourt Angelina Dolge Melissa Doro Marie Dullea-Prentice Clifton Durand Mary Ann Durand Herman Dykes Irwin Feinstein Larry Feinstein Chris Fulcher Bryan Funk Joseph Gagliano, Jr. Maria Giordano Patricia Graham Stuart Graham Stephanie Green Shirley Grobousky Andrew Gross Bernadine Hagnauer Ed Haley Melissa Edwards Antonina Fanara Bill Feinstein

Richard Makanoff Albert Matsuura Gary Mayes Susan McLaughlin William Meadows Neal Middelkamp Patricia Middleton Alfred Mottram Robbie Mudroch Frank Mundt Robert Murdoch Claire Murphy Joseph Neustadt Patricia Nicolosi Cathleen Nilles Curtis Pankey Richard Patka Michele Paul Christopher Paulsen John Perna Bryan Pfirrman Reed Moberly Sandy Morris

Angie Ruddock Wade Ruddock Nate Ruttenberg Caden Schaeffer Brendan Schuetze Colette Sims Darrius Singh Avery Somers Chris Stuart Lisa Stuart Nicholas Sumberaz Daniel Sze Danyel Tacker Matthew Tacker Maggie Tucker John Tully-Gold Samuel Tynczuk Kosta Walsh Matthew Waltrip

Janice Theesfield Andrew Wagner Rosanne Wakat Michael Walter Dolores Warnke Mildred Webster Evelyn Weickum Jim Wendling David Williams Karen Woltering Jeffrey Wurst

Lee Howell Sam Howell Gail Jehan

Alexandra Jennings Cassandra Jennings Francis Kovrlija Emily Kramer

Donations In Honor Of Joanne Abrams Anthony Albano

Michael Kramer Nicole Kramer Benjamin Kuehn Sara Kyle Sydney Lerman

James Arquilla Remo Arquilla Nora Baker Mike Barnett

Denise Winter Cynthia Zarate

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Photos on back cover courtesy of Tim Joyce