Connective Issues Spring 2018
TRIBUTES
WE REMEMBER AND HONOR
We are grateful to our members and friends who have made contributions in memory of, or in honor of, the following individuals. These donations are fully appreciated and support our programs and services that create a brighter future for all those living with Marfan syndrome and related connective tissue disorders.
Donations In Memory of: Carmen Abate Carol, Adrian & Elias Adame Anthony Albano, Sr.
Fred Hearn Jesse Heck
Carl Bartizek Gilbert Bashe
Dilip Patel Richard Patka Christopher Paulsen Mark Perry Roberta Pfleging Edgard Pierre Jackie Prindle Julie Propp Evelyn Regan Kevin Richard Andrew Rigney Brock Robertson Ethan Robinson Maryann Roney Naomi Roney Carla Rosales Keith Rudy Gabrielle Ruelos Gary Salzman Harry & Callie Saenger Candace Schmit Efrat Schwartz Regina Schwartz
Alixandrea Hallahan Jeff & Tonya Halter Rocco Hermogenes Hannah Hill Sandra Hill Max Hillel Max Hommel Deasia Houston Sam Howell Kimberly Huddleston Larry Jefferson Christian Jeffries Gail Jehan Cassie Jennings Caryn Kauffman Brody Keil Amy Kipnis Benjamin Kuehn Nicole Kunard Lyz Kurnitz Foxy Kusin Eugene Kutner Sabrina Lang Danielle Langhorne Shoshana Leeder Matthew Lenhart Sydney Lerman Ian & PJ Lesko Sarah Levy Andi Lewis Sinclair & Simon Li David Liang Joshua Looney Rebecca Lopkin Luci Luetkemeyer Daniel Lugano Georgia Mace Jerome Madson Sara Maher Barbara & Harold Makanoff Kyle Mann Grant Martin Eileen Masciale Karen Maxwell James Mayer Morgan Masterman & Peri Graybill Michael Mazzuca Judy Lavely Alec Lebeda
Nicole Perez Danny Petric TJ Phillips Josefina Piape Reed Pyeritz Andrew & Sarah Rankins Ann Reinking & Chris Stuart Brady & Kade Relias Mike Revelle Judith Ricca Douglas Richter Michael & Ginger Roberts Mary Rodriguez Charles Rogers The Rogers Family Seth Rogge Jessica & Joseph Roman Kyler Romano Mr. & Mrs. Peter Roos Ron & Pam Rubin Mr. & Mrs. Wade Ruddock
Richard Heim Shawn Heldt Kyle Hempstead David Hill Jack Hinchion Jim Hinds Marvin Hohenstein Ben Holt Max Hommel Eileen Ilberman Matthew Ingraffia Ann Jarosz Steve Jerkins Gail Johnson Marsha Jones Michael Jordan Jill Kaeppel Robert Keating Tom Kievit Marc Knell Carmela Kolman Ed Kovic Margaret Kristl Julie Kurnitz Eugene Kutner
Hunter Beckholt Steve Beckholt The Bergstrom Family Reed Berhalter Sheila Berkowitz Austyn Bevis Paula Bower Alan & Becky Braverman Cara Brobst
Shane Albaugh Mary Anderson Carrie Ann Tyler
Gloria Arias Vicki Asbury Brian Barker Raymond Barlow David Barry Donna Beard Michael Beardslee Yedidya Ben-Avraham Jeff Berkowitz Ryan Bonner Madison Boudreaux
Bryan Butvick Morgan Byrnes Tommy Cadden Vivian Capaccione Austin Carlile Zane & Jennifer
Christensen & Family John & Danica Ciccariello Priscilla Ciccariello Andy Cogen Leo Cole Kelly Coselli Pennie Couch Jason Cox Michele Cripps Steven Crombe Lisa D’alessandro Cynthia Daniele Abe DeAnda Katharine Dennis James Dickey Ashley & Damian Dockery Haley Dostalik Brie Edwards DJ Edwards Jim & Anita Edwards Callie Efurd Ellen England Patrick Enright Lucas Escarcega Valery Esartia Billy & Mary Essers Matthew Falco Randy & Susan Falco Ella Feek Beverly Feinstein Jennifer Fiedler Carson Flanagan Joseph Fontana Evan Freeley Kelly Frick The Gaboriault Family Mads & Aila Gjefsen Skyler Glassford Haley Golden Paul Grady Alan & Lily Grainger Matt Green Sadra Bella Green Jodi Feinstein Ethan Fellows
Barbara Bowling Marissa Broady Murray Bromberg Terri Brooks Jennifer Buffone Matthew Bullis
Kierra Rydzewski Harvey Schatten Bill Selvitelle Mandy Shaw Mikey Shaw Jean Shenk Kayla Silverman Darrius Singh Suśan Sobers Avery Somers Daniel Speck Max Spencer Lowell Stephens Heidi Stepp Carter Stuckman Nicholas Sumberaz
Jacob Searcy Spencer Sellas Neva Seymour Dorit Shapiro Mike Shaw David Sherman Barbara Short Mark Silver Rosanne Simone Rosalind Smerling Elizabeth Sparks Casey Sprouse H. Steven Durett Bridget Sweet
Paul Bullis Paul Burke
Jerry & George Butler John & Carolyn Cafarelli Gabrielle Cannistraci Sarah Cayo Diana Chamblin Brooke Chapman Morris Confino Sarah Confino Alex Connor Callie Cornely Alyssa Cornn Michael Daly Jacquie Dixon Angelina Dolge Ann Dolish Marcos Dorfeo Justin Duck Clayton DuVall Hilary Eagan Clark Anna Ellis Patricia Evans Ben Faust Autumn Ficco Marx Adam Frank Todd French Melodie Friesen Bryan Funk Gregory & Christopher Gilmore Menetta Graeber Wied
William Kutz Robert Lake
Stanley Lambert Kamden Langford Jonathan Larson Brian Laughman Milan Lazorcik Jack Lee Young Alexandrea Macaluso Jerome Madison Richard, Norma & David Makanoff Domini Mallette Robert Malvica Edward Martinkovic Richard Mazzuca Sheridan McCabe Mimi McDonald Kelly Amy Mcmahel Janet Medkeff Benjamin Mickey James Miller Michael Monforte Nancy Montgomery Patricia Moran Sandy Morris Howard Morrissette Frank Mundt Marshall Munt Claire Murphy David Murray Paula Neil Paula Nelson Joseph Neustadt Casey Nilles Michael Nygaard Giotina Oikonomopoulou
Tommy Tant James Taylor Loy Taylor Phyllis Taylor Henry Thomas John Torode Collin Trebesch Wayne Van Linden Jennifer Volpe Andrew Wagner Ron Wallace Conrad Wennerberg Rebecca White Sheppard
Olivia Swancer Matthew Tacker Grace Tamez Victor Tavares James Taylor
Samantha Thomas Stephanie, Steven & Jason Tokos Marit & Morgan Toombs John Tully-Gold Lois Tyznik Alexander Utz Jake Uy
David Whiteman Brent Wiedmaier David Williams David Willson Jeffrey Wurst Matthew Young
Bert Medina Ben Meiner Bryan Miller Jonathan Miller Katie Mills Macon Mitchell Madeline Moore
Charles Vago Garret Waid Hillary Wallace Leah Wallach Adam Warren
Benjamin Weisman Alexandra Weygand Emily Wheeler & Myles Danielsen
Stephanie Green Willoughby Greer Cheney, III
Donations In Honor of: Aaron Aguayo Anthony Albano
Miyah Morales Shaine Morris Karen & Michael Murray Liam Nelson
Andrew Gross Louis Guenoit Roberto Guerra Sara Hansen Barbara Harden Johnson
Marcia Willing Denzel Wilson Anna Witiuk Andrea Witte
Mustafa Al-Gamari Micah & Stephanie Amdur-Clark
Carter Nietrzeba David Nietrzeba Dominga Noe Crista Oehler Mark Pereslete
Raquel Griffis Diane Grubbs Jack Guglielmo Hadley Gunn Creasie Hairston
Eric Ames Ezra Ames Darius Aunt Scott Avitabile
Steven O’Keefe Daniel O’Mara Vincent Passi
Tejuan Harper Philip Hayden
Spring 2018 15
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