Connective Issues Fall 2025

Health Fa ir Provides Needed Assessment and Care A highlight of the 40 th Conference was the Health Fair, o ff ered at no additional cost to 66 attendees. Hosted by Children’s Healthcare of Atlanta and Emory Healthcare, the two

day event provided vital access to medical services for community members – many of whom experience barriers to quality care close to home. On the first day, participants underwent screenings such as echocardiograms, eye exams, and lung function tests. The following day, they received comprehensive evaluations from more than 30 medical professionals. “It was an honor and privilege for Children’s Healthcare of Atlanta and

 L to R: Dr. Chetana Reddy, Dr. Ron Lacro, and Dr. Stephanie Wechsler  Dr. Glen Iannucci

“Bringing together medical experts from across the country who generously volunteered their time to help those with connective tissue conditions reflects the very best of medicine - collaboration, compassion, and a shared commitment to improving lives.”

Emory to support the 40 th Conference and host the Health Fair,” said Dr. Glen Iannucci, director of the Children’s Aorta and Vascular Program.

Chris Underwood –Virginia For Chris Underwood, who has VEDS, this was his second Conference but first time attending the Health Fair. He came seeking the research and practical tools to help him manage his condition and “live his best life.” Chris wanted reassurance from leading VEDS experts that his care plan was on track. “I wanted to confirm that my current status is what I am being told, and that the care protocols are adequate for me,” he explained. He also hoped to bring home new information to his local medical team to best advocate for himself. “The Health Fair was pretty amazing. I learned many things I didn’t know!” Chris said. “Some of it was to be expected, like updates on new research, but other information was specific to my situation. I also learned a new fact about exercise and use of the Rate of Perceived Exertion chart to obtain an optimal workout.” Chris left Conference “feeling more empowered to manage my condition and continue my GOAL of Get Out and Live!” “Get Out and Live!”

 At the Health Fair, Chris was able to receive an echocardiogram as well as cardiac, vascular, and dental consultations. Pictured above with Dr. Mitali Patel and below with Dr. Alan Braverman

8

Marfan.org