Connective Issues Fall 2025

WE REMEMBER AND HONOR We are grateful to our members and friends who made contributions in memory of, or in honor of, the following individuals between April 1, 2025 – July 31, 2025. These donations support our programs and services that help create a brighter future for people living with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and VEDS. Donations to Walk for Victory are not included. If you would like to remember or honor someone special, please visit Marfan.org/donate . DONATIONS IN HONOR & MEMORY

INHONOROF All Marfan Folks Irish Aiden Cameron Allen Angelo Asimakopoulos John Avendano Filip Avramovic Leo Azarraga Allison Bailey NoraBaker Erica Baldwin Andrew Bates Ricardo Belchior Adrianne Knowledge-Bey Mark Biegert JackBish Christopher Blum Rachel Bowen KyloBrack Sean Broadbent James Brodsky Joseph Buckley Maggie Buckley Laurel Burke Huxley Clark Dani Beth Clements LeoCole John Connolly Caitlyn Cooke Eric Cooper & Family Heather Cottier Vilneide Covello Charlie Cowden Robert Dallas Christian D’Angelo Oliver Bowra-Davis John Deblecourt Disc Chaineys Golf League Hannah Dixon Haley Dostalik Emerson Dowdney “Chicago” Joe Doyle TomEllis Dane Everhart Marsha Faggen Victoria Falcone Pawar Matt Farace Tyler Farley Evan Feenstra Aaron Jasper Fick Maia Fleener

Flynn’s Friends Catherine Foscaldo Kolton Franks ¹ Sofia De la Garza Sofía María De la Garza Flynn Gavins Laurel (Giacone) Striker

Shawn Grunberger Brian Hancock Michael Henter MaxHommel Ross & Kathleen Hooker David Hufnagle Olasupo Fowowe, II Janice Infalt J. Mike Ireton Christopher Jedda Courtney Whitmore Jensen John Dennis Johns Bill Johnson Michael Jordan Jon JPN22 Jackie Justice William Edgar Kelly Haven Kerns Paula Knight Margaret McCabe Kristl Laurel Lambrecht Alexa Lawrence Jack Lemmer Marilyn Browdy Leonard Nancy Ellen Lepping Charles Lincoln Dennis Lithén Glenn Litton MaryLobo Margaret Eddy Lucas Stephanie Mahnken Frank Marin

MarthoAmo Virginia S. Anderson Angelo Asimakopoulos Madison "Birdie" Rose Barbieri Brittany Beallis Scott Bergkamp Bonnie (Bigheart) Biggart Trevor Binns JackBlack Jennifer Bodnar Rachel Bowen William Bowling Stephanie Braconnier Edward Brenner Rebel Bryant Jennnifer Bu ff one Brody Bullock Parker Burleson Mary Carter Richard Casale SarahCayo Aileen Cheng Stephen Rosario Ciccariello Marjorie Clark G. William Condran Nancy Conger John M. Conolly Richard Coren Heather Cottier George Covington, Jr. David Dichek Graham DiMartino Martin Dusserre Michael Enbar Dane Everhart Marsha Faggen BenFaust William Feinstein Aaron Jasper Fick Eric Fitzgerald Angela Fleagle Grace Friend Melodie K. Friesen Brandon Gaona Cheryll Gasner RandyGri ffi th Loretta Grotefend Paul East Jay Elliott Yvonne Fink Eric Fischer

Eleanor Magel Lubka Patrick Maguire

Genesis & Brennen Saele Salm Family Gabrielle Rozenberg Samuels Dennis & Mary Sandelski MazzySass Rhett Seaberg Karen Cassidy Selvaggio Spencer Skrzypiec Michelle Smith Sponseller Striders Paul Sponseller, MD Philip Storace SamStout Chris Stuart Brooks Stukey Nicolas Swanson Charlie Sweeney TeamMaia Darryl Teruya NickTeune Those I Love Miguel Velasquez Irish Wanser Dylan Watkins Michael Weamer David Weston Jonathan Wetzel Spencer Wetzel Alexandra Weygand HenryWied Whitehead Family Greta Williams Matthew Williams Lisa Wilsbacher, MD Connor Wilson Faith Wobbe Sam Woodhouse Isla Wright Wyatt Wright Joy, Adriana, & Giani Xhudo MJYang Emma Yarbrough Jennifer Yasick & Family

Cathleen "Casey" Nilles Cheryl Ogonowski Lucas Osuna Daniel Miriti Pacheco Asaka Watanabe Park JoeParr Shobhna Patel Christopher Paulsen Ron Paulsrud Josefina Piape Carolyn Powell Anthony Rampulla Gri ffi thRandy Jennifer Rankins Michael Reading Ann Reinking Jonathan Reyes David Ricca Melissa “Lis” Rock Brooke Roth Kaylana Lee Ryan AvaShaw Jill Kaeppel-Sheiner MetaSmith Libby Sparks April Blue Starlight Nancy Marie Stelfox Victor Tavares, Jr. Burke Taylor

Talulla "Lulu" Maher Stephanie Mahnken Isabella Marin Grant Martin Rachel Martin Noah Masrur Aimee Mastrangelo Matthews Family Greyson Matthews Karen Maxwell Thomas McDowell Ron Lacro, MD Bridget Porter Metz Lucie Morehead Brandon Morgan Claire Morris Robbie Mudroch Mary Anne Muriello Karen & Michael Murray Nupoor Narula, MD Theresa Newton Fiona Neylon Abi Nielsen Torsten Nordstrom Carole Nowak KurtOlson Lucas Osuna Will Oxman Noah Padilla Daniel Papke KyungPark Violet Pekarek Precy Piape Andrew Plavetzky Adalynn Meyers Katherine Mills Macon & Tobie Mitchell Haley Monts

Isabella Green Scott Griebel GraceGri ffi th RandyGri ffi th Kingston H. Landon Haddad Harper Hancock Cli ff Hardesty Libby Harper Richard

Hawkingberry Lucy Henderson Beckett Hotchkiss Brian, Noah, & Katelyn Howell William Henry Floyd IV Sydney Jenkins Alix & Ezra Jennings Cassie Jennings Sylvia Mae Jinks Cooper Jones Justen Family LiaKaplan CarynKau ff man BenKemena Brady Klefman Paula Knight Dawn Knowles Avery Koenig Kramer Family Emily Kramer Nicole Kramer FoxyKusin SaraKyle EmilyLake Darryl Langshaw Miyla Langshaw Wendy Leben Brant Lemieux Colton Lemieux Marilyn Leonard Judi & Jerry Lerman Sydney Lerman Sylvia Lewis Sinclair & Charlie Li David Liang, MD BenLopkin

Jason Theriault Kayley Tigges Vincent Topete John Torode Larry Torode Louis Valis UncleVic

Allyson Marisch Norman Martin Mason Mascato Albert Matsuura Erica Mayton Scout McCauley Connor Metz Luis Daniel

Laura Wascha Dylan Watkins Mercedes Weber KarenWeil Alana Wesley Leslie Whittington HenryWied Victoria A. Willhoite Walter & Pat Winship LeslieAnn Wittington Christopher Yasick

Kristi Posival AnnePower Jacob Prunier Brynn Prykucki Christa Puccio Stella Pyatt Guidry Ramoin

Rodriguez Montesino Haley Monts

Kaitlyn Morales Andrew Morrell Pam Moultrup Mary Anne Muriello Hatem Mustafa Joseph Neustadt Patricia Nicolosi JonNiemi Diego Nieto

Tony Yasick, MD Heather Young JaneZore

James Richardson Doug Richter, MD Ayden Riggs Amanda Rivera Gustavo Rodriguez

Mike Yasick TomYasick Elizabeth Anne Steady Young Vince Young

IN MEMORY OF Carol, Adrian, & Elias Adame Mary Beth Adams

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