Connective Issues Fall 2024

WE REMEMBER AND HONOR We are grateful to our members and friends who made contributions in memory of, or in honor of, the following individuals between April 1 – August 10, 2024. These donations support our programs and services that create a brighter future for all those living with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and VEDS. Donations to Walk for Victory are not included. If you would like to remember or honor someone special, please visit Marfan.org/donate . DONATIONS IN HONOR & MEMORY

INHONOROF

Jack Ish Alix & Ezra Jennings Cassie Jennings Cooper Jones Jerrod Jung Jameson Justen Jill Kaeppel-Sheiner

David Ricca James Richardson Emilio & Xaeed Rico Ayden Riggs Amanda Rivera Michael Roberts Caden Schae ff er Rhett Seaberg William Selvitelle LillyShaw Adrian Sierra Spencer Skrzypiec Michelle Smith Evan Smolen Eleanor Stahura

SarahCayo Aileen Cheng Steven Ciccariello Eileen Cieslik Joseph & William Colavito

Mary Beth Meader Connor Metz Haley Mints Luis Daniel Rodriguez Montesino Haley McKenzie Monts Claire Moore Kaitlyn Ash Rose Morales

All Marfan Folks Allen Family Jaelyn Allmon Arche Family Elizabeth Aronson RobAsche Filip Avramovic

Nancy Conger Richard Coren Heather Cottier Robert Cronquist Baise Dafoe

Bella Kehoe BenKemena Daniel Keyes Robert Kitson Brady Klefman Dawn Knowles

Lucie Morehead Andrew Morrell

Mary Bailey MarenBain NoraBaker

Pam Moultrup Joe Neustadt JonNiemi Debbie Niespodziani Casey Nilles Cathleen Nilles

Robert L. Daly Larry D’Apice Robert Armin Dearworth John deBlecourt John Michael Donovan Amy Jo Eannuzzo Gaylene Ebling JayElliot AnnaEllis Michael Enbar Eerett W. Erwin Manouchehr Esfandiarei Dane Everhart Matthew Kenneth Fanneli William Feinstein LeeFink Eric Fitzgerald Nathan Fletcher Commander William Forster Olasupo Fowowe, II Grace Friend Steve Gallo Merv Ganesh Milton & Marjorie Golden Alex Hardtke Scott Heisler Michael Henter MaxHommel Jill Kaeppel-Sheiner Ross & Kathleen Hooker Matthew Ingra ffi a Christopher Jedda John David Johns Bill Johnson Michael Jordan Theodore G. Kurowski, Jr. Haven Kathleen Kerns Neal Kidney Donald “Joe” Kirkham Bruce Klein Michelle Ann Koppelman Margaret McCabe Kristl Theodore Kurowski Alexa Lawrence Jack Lemmer MaryLobo RudyLuna Stephanie Lee Mahnken David Hufnagle Scott Hunefeld Eileen Ilberman

Mary Kate Barnes Ricardo Belchior Sam Biggart JackBish Emma Borreggine KyloBrack Sebastian Brady Dr. Alan Braverman Sean Broadbent Beth & Allison Brobst Quade Bywater Isaiah Callahan Bridgette Camasso Jordan Clark Katharine A. Clarke Dani Beth Clements

Will Kocian AJKrocker Audrey Krocker FoxyKusin SaraKyle MaryAnn Laccabue Dr. Ron Lacro Randy & Simon Lance MilanLaud Lanky Legends Sydney Lerman Colton (Coli) & Brant Lemieux Preston & Simon Li Sinclair Li Eleanor Magel-Lubka

SamStout TeamBlum Team J.A.G. VEDS Warriors The Fox that Rocks

Otto Nitschmann Anthony Nocella Rodney Oberle Dillon Oliver

Maggie Tucker Alexander Utz Miguel Velasquez Daniel Vicini Carisa Walker Diane Walsh

Daniel Miriti Pacheco Christopher Paulsen Vince Payne

Jose fi naPiape Carolyn Powell Terry Preiss Terry Don & Ginger Preiss Caroline Pugh Briley Reiland Ann Reinking Jonathan Reyes Shirley, Daniel, Andrew, & Janet Rigney Patricia Roberson Ellin Rosenthal Brooke Roth NoaRussel Marilyn, David, Allan, & Carol Ruth Michael Salzillo David Schettler Patrick Schumer Eileen M. Schwend Susan Selvitelle Jeremy Semano ff Stacey Baratz Shapiro AvaShaw Joan Shields Lucille St. Laurent John F. Stuart Michelle & Bodhi Swindle Luke Terrell Jason Theriault Carson Toane Larry & John Torode ColeTran Daniel Vicini

Joseph Walsh Brandy Ward Adam Warren Stacey Watson Drake Welliver Denise Wesolowski Jonathan Wetzel Alexandra Weygand HenryWied Matthew Williams Connor Wilson Sam Woodhouse Joy, Adriana, & Gianni Xhudo Heather Young JaneZore IN MEMORY OF Derek Adams Homer Ailstock EricAmes Virginia S. Anderson Erik Dominguez Armenta Angelo Asimakopoulos Wayne Ayscue Melissa Balke Dennis Banh Stacy Baratz Charlotte Basurto-Olsen Scott Bergkamp Chris Biggart Marci Bikshorn Charles Bovino Stephanie Braconnier Michael Brandt David Braverman Penn & Patricia Broecker

Joseph Colavito Sheryl Colavito LeoCole

Matt Lupton Talulla Maher Isabella Marin Dawn Marisch Judy Marshal Grant Martin Karen Maxwell Patricia Mayer Lisa McCormick BenMeiner Camila Melero Adalynn Meyers Miss Steph Bailey Milburn Barb Mooney Claire Morris Bella Morrison Lynda Moylan Robbie Mudroch Michael Murray Betty Nagatani Christy Nath Theresa Newton Marko Oliva

Caitlyn Cooke Coops. Troops Charlie Cowden Ariele Damaa Christian D’Angelo-Je ff ries Jonathan DeLong Denton Family Matthew Dimarzo

Haley Dostalik Rachel Dudley Clifton Durand Mila Dziewit Gabriella Earnhart Callie Efurd Auntie Face Eric Filipkowski Maia Fleener Catherine Foscaldo AlexG Lisa Anne Gallagher Christa Piccolo-Gallo Giles Family Isabella Green Farrah Greenlees Goggin Family Hadley Gunn Nicholas Guthrie RileyHadt Iris Hawkins Lucy Jane Henderson Noah Hirschensohn Beckett Hotchkiss Brian Howell Gaynell Howell David Hufnagle Mary Scott Hunter

Reeves, Grant, & Jen Olson William Oxman & Family Luz Padilla Noah Padilla

Joseph Walsh Michael Walter Dolores Warnke Mercedes Weber

Elizabeth Petty Jo Lynn Philippi Kendall Podsen Kristi Posival AnnePower George Preiss

Kelli Weickum Alana Wesley Kyle Whitford Denise Winter Michael & Chris Yasick Elizabeth Young

Frank Marin Ally Marisch

Jennifer Bu ff one Anita Jo Burdzel

Dr. Reed Pyeritz Guidry Ramoin Drew & Sarah Rankins River Reiner

Norman Martin Albert Matsuura Erica Mayton Scout McCauley

Parker Fount Burleson Jerry & George Butler Chelsea Cameron-Horner

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Fall 2024