Connective Issues Fall 2024

GALAS Provide Critical Funding for Research and Programs Special events play a vital role in securing the funding necessary for advancing research, support services, and essential programs. This year, our HeartWorks galas surpassed expectations, raising over $2.3 million and hosting more than 1,200 attendees, including individuals and their loved onesaffected by genetic aortic and vascular conditions and healthcare providers who dedicate their careers to treatment.

 The De la Garza family at Houston HeartWorks

“The HeartWorks Gala in Chicago blew my expectations away,” said Susie Doyle, whose son has Marfan syndrome. “The speeches throughout were so authentic and heartwarming, and the band had everyone on their feet, having a blast dancing. What I loved most though, was connecting with other parents that have children with Marfan syndrome in a joyful, fun environment. This was my fi rst experience attending, and I look forward to next year!” Held in New York, St. Louis, Houston, and Chicago, HeartWorks o ff ers a special evening fi lled with music, fi ne dining, auctions, and a chance to honor community members. The

 Chicago HeartWorks chairs, James and Jess Milburn with daughter Bailey

galas recognize some of the world’s leading medical experts, business leaders, and volunteers who have made significant contributions to advancing the understanding and treatment of genetic aortic and vascular conditions. These events also provide a personal glimpse into the lives of those impacted, fostering awareness and generating meaningful change. “This year was particularly special as we marked the 15th anniversary of Heartworks St. Louis,” said Dr. Alan Braverman, who, alongside his wife Rebecca, has hosted the gala since its inception. “Celebrating this milestone with friends, family, and the greater Marfan and related communities was a momentous occasion for us.” In addition to the HeartWork galas, the Foundation also organized two wine tastings, Evening with Heart Scottsdale and Uncorked in New York City, which raised an additional $100,000. Through these events, we continue to raise critical funds and awareness, advancing our mission to support those a ff ectedby genetic aortic and vascular conditions. Thank you to all those who have attended, donated, sponsored, supported, and shared their voices to make an impact. Get tickets today to these upcoming special events: ★ November 7 – Evening with Heart Scottsdale

 Heartworks St. Louis hosts, Dr. Alan and Rebecca Braverman

★ November 22 – Houston HeartWorks ★ February 21 – Chicago HeartWorks

Voices for Victory , a video shown at each HeartWorks Gala, spotlights a community member’s or family’s journey with Marfan, Loeys-Dietz, or VEDS. Watch the videos on our YouTube channel or scan the QR code to learn how these conditions impact our community.

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Fall 2024