Connective Issues Fall 2024
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Table of contents
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Message from Michael L. Weamer, President & CEO
2
Foundation Impact: A Year in Review
3
New Grant Program Recipients
4
New Board and Committee Members
6
Navigating Pediatric to Adult Care with Marfan Syndrome
7
Providing Global Access to Education and Connection
8
A Car with a Cause
10
International Symposia Educated and Empowered our Community
10
Summit in Norway Convened to Improve Patient Care and Outcomes
11
Quest for Answers Leads to Diagnosis and Expert Care
12
Galas Provide Critical Funding for Research and Programs
13
Camp Victory 2024 Recap
14
Walk For Victory Building Community and Raising Essential Funding
14
We Remember and Honor
15
Donate to the 2024 Research & Education Drive
16
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