Connective Issues Fall 2023

CONFERENCE STATS & SNAPS 39 th Conferenc e i n Chicago o

“I have felt so isolated since my son was born during COVID and we had never met anyone else with Marfan Syndrome. Meeting other parents helps me not feel so alone.”

628 TOTAL

ATTENDEES

Registrants from across the United States as well as from Argentina, Australia, Canada, Chile, China, Costa Rica, Great Britain, Libya, Mexico, Nigeria, the Philippines, and South Africa. 12 ............... Countries Represented 78 .............. Children 61 ............... Teens  Attendee Condition Connections 260 ......... Marfan 118 ............ LDS 96 ............. VEDS 27 .............. Other  Health Fair at Conference 331 ........... Multidisciplinary Health Fair Appointments 35 .............. Healthcare Professionals 28 ............. Healthcare Observers 68 .............. Health Fair Participants  Popular Activities ★ General Session ★ Welcome Dinner & Awards Ceremony ★ Creating Connections Luncheon ★ Victory Party ★ Condition-Specific Mixers  Top Reasons for Attending 1. Connect with other a ff ected individuals 2. Have direct contact with medical professionals 3. Learn more about living with a genetic aortic or vascular condition

SCAN THE QR CODE to learn about one attendee's experience at Conference.

“As a parent, I found it to be very emotional and powerful. I was gladly surprised when my daughter burst into happy tears to tell me how relieved she was to meet teenagers that deal with the same daily struggles as she does.”

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Fall 2023