Connective Issues Fall 2023

Upcomin g Events Get Connected, Learn, & Live Better!

IN-PERSON Educational Events In collaboration with medical partners, we host regional symposia across the country throughout the year. These educational events provide an opportunity to learn from and meet with local medical experts on Marfan, Loeys-Dietz, VEDS, and related genetic aortic and vascular conditions and provide you with tools to live a better life. Whether you have a condition or are the loved one of someone who does, you will be able to connect with others like you in your area. Some of the symposia also o ff er fun programs for children (ages 5-12) so you don’t have to worry about childcare. Check the website at Marfan.org/ educational-opportunities for upcoming information and registration. ★ October 28 Pittsburgh Regional Symposium Partner: UPMC Heart and Vascular Institute ★ November 4 Los Angeles Regional Symposium (English and Spanish Tracks) Partner: Genetic Aortic Related Disorders (GARD) Center at the USC Keck School of Medicine ★ April 13 Austin Regional Symposium Partner: University of Texas-Austin ★ May 11 Portland Regional Symposium Partners: Oregon Health & Science University, The Ehlers-Danlos Society

UPCOMING Walk for Victory Events  Cleveland, October 21

 Tampa, January 6  Houston, March 2  Phoenix, March 3

 Indianapolis, October 22  Nashville, November 4

Get connected with your community! Find a Walk for Victory in a city near you at Marfan.org/walk .

3 RD ANNUAL Evening with Heart Scottsdale November 2 – This exciting

3 RD ANNUAL Houston HeartWorks Gala December 1 – Joinus in Houston for a memorable evening of cocktails, dinner, entertainment, and great company! We will also honor those who have made outstanding contributions to the community.

event will feature a wine tasting with five wines

and food pairings for each, along with light bites, open bar, silent auction, games and muchmore!

Get your tickets today and view other upcoming special events at Marfan.org/events . All proceeds raised from both events will go toward creating a brighter future for those living with Marfan, Loeys-Dietz, VEDS, and related conditions.

VIRTUAL Spanish-Language Educational Events Free Webinar – November 9

Aortic Surgery and Connective Tissue Conditions: What You Should Know! Vicente Orozco-Sevilla, MD, Baylor College of Medicine Save the Date for our 3 rd Virtual Spanish-Language Summit on January 20, 2024. Marfan.org/educational-opportunities

SCANTHE QRCODE to read about one community member’s experience at a symposium.

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Marfan.org