Connective Issues - Fall 2019

The Foundation is pleased to announce the addition of three esteemed physicians to our Professional Advisory Board. Dr. Shaine Morris, Dr. Sherene Shalhub, and Dr. Rachel Kuchtey. Dr. Morris is a pediatric cardiologist at Texas Children’s Hospital and co-director of the hospital’s Cardiovascular Genetics Clinic. Dr. Morris’ research focuses primarily on improving outcomes for children with Marfan syndrome and related disorders. She is active with The Marfan Foundation, participating in our Houston Walk for Victory every year and, most recently, co-hosting the 2019 Annual Conference. Dr. Shalhub is an assistant professor in the Division of Vascular Surgery at the University of Washington. She is also the director of its Multidisciplinary Vascular Genetics Clinic. Dr. Shalhub is active with the vEDS community. She most recently gave a webinar on vEDS for The Marfan Foundation and led workshops at our 2019 Annual PAB NEWS

p Members of The Marfan Foundation’s Professional Advisory Board at the 2019 Annual Conference.

Conference. Dr. Kuchtey is an associate professor in the Department of Ophthalmology & Visual Sciences at Vanderbilt University Medical Center. A past recipient of a Marfan Foundation research grant, Dr. Kuchtey also served on the organizing committee for the 2018 International Marfan Symposium. Recent PAB Accomplishments Paul Sponseller , MD , Johns Hopkins , is the new president of the Scoliosis Research Society. Leonard Girardi , MD , NewYork-Presbyterian Hospital/ Weill Cornell Medicine , was recently appointed to the Board of Directors for the American Association for Thoracic Surgery. Hal Dietz , MD , Johns Hopkins , received the 2019 Mentorship Award from the American Society of Human Genetics. The Foundation congratulates these PAB members on their recent accomplishments. We are honored to have such an esteemed group of medical experts who are will- ing to share their time and expertise with our community.

See if your experience can add to research findings by participating in a research study. View current studies seeking participants at: https://www.marfan.org/current-studies

Dr. Shaine Morris Dr. Sherene Shalhub Dr. Rachel Kuchtey

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