Connective Issues Fall 2018

WALK FOR VICTORY

WALK FOR VICTORY COMING TO 18 CITIES Creating Connections, Raising Awareness, and Raising Funds

Walk for Victory, our signature program that brings families and friends together in cities nationwide to celebrate those with Marfan syndrome and related conditions is expanding. We are adding Walks in five more cities in the coming year, bringing our total to 18! This year, we’ll bring Walk for Victory for the first time to: • Indianapolis (10/14/18) • San Francisco • Birmingham, AL Kate Sprouse, who is a co-chair for the inaugural Indianapolis Walk for Victory, said, “My hope is that it is a day to gather together with family and friends to help support a cause that is so important to our family. I hope we have a day of celebration, but also a day of remembrance for those who have lost their battle. I hope it is the first step to those in the area becoming more aware of the disease and knowing the signs to help in earlier diagnoses.” The other Walk for Victory locations this year are: • St. Louis (10/7/18) • Sacramento (12/15/18) • South Florida—Hollywood (1/27/19) • Houston (3/2/19) • Atlanta • Birmingham, AL • Boston • Raleigh, NC • Milwaukee

and their loved ones,” said Christy Nath, who participated in the Portland Walk for Victory last spring. “These local walks are so important to spreading awareness and providing a sense of community for those with Marfan syndrome and other connective disorders. I can't wait to see everyone again at next year’s Walk. Mostly, I can't wait to be involved with the community and help make an impact locally.” To learn more about Walk for Victory and get involved, please visit marfan.org/walk.

• Cleveland • Milwaukee • Minnesota—St. Paul • Pasadena • Phoenix

• Portland, OR • New York City • San Francisco • Washington, DC Dates are noted where available.

Last year, more than 3,500 people participated in the Walk for Victory and more than $640,000 was raised for the Foundation’s life-saving programs and services. This year, we hope to have more than 5,000 people participate and raise more than $850,000. “It was wonderful to see so many local families come out to support people with Marfan syndrome and related conditions

TOP : NEW ENGLAND TURNED OUT IN FULL FORCE AT THE BOSTON WALK FOR VICTORY HELD IN BOSTON COMMON IN JUNE. BOTTOM : THE INAUGURAL PORTLAND (OR) WALK FOR VICTORY IN MAY WAS A HUGE SUCCESS WITH PARTICIPANTS FROM THROUGHOUT THE PACIFIC NORTHWEST.

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