Connective Issues Fall 2018

MEDICAL INFORMATION

PREPARE FOR VICTORY New Virtual Medical Symposium Series

PAB NEWS

The Marfan Foundation named Dr. Luciana Young and Dr. Melissa Russo to its Professional Advisory Board, an esteemed group comprised of the world’s leading experts on Marfan and related conditions that provides medical oversight to the Foun- dation’s programs and services. Dr. Young , a pediatric cardiolo- gist, is the director of the echocardiography lab at Seattle Children’s Hospital and professor of pediatrics at the University of Washington School of Medicine in Seattle. Prior to joining Seattle Children’s Hospital, Dr. Young was co-director of the Connec- tive Tissue Disorders Clinic and director of the echocardiography lab at Ann & Robert H. Lurie Children’s Hospital of Chicago, as well as professor of pediatrics at the Northwestern University Feinberg School of Medicine in Chicago. Dr. Russo is a maternal-fetal medicine and clinical genetics specialist in the Division of Maternal-Fetal Medicine at Women & Infants Hospital at Brown University in Rhode Island. Prior to joining Women & Infants, she was at Texas Children’s/Baylor University in Houston, TX, where she was an assistant professor of maternal- fetal medicine and human and molecular genetics. Her research interests include prenatal genetics, reproductive and pregnancy outcomes in women with connective tissue disorders such as Marfan syndrome and Loeys-Dietz syndrome.

Knowledge is power. And we want to make it as easy as possible for you to access information from our world renowned Professional Advisory Board and other leading medical experts on Marfan and related conditions. That’s why we created the Prepare for Victory: Virtual Medical Symposium Series , webinars that will arm you with the latest diagnosis and treatment information from the experts. We hope this knowl- edge will empower you to advocate for yourself or your family members with your doctors, schools, employers, and more.

The new series kicked off in September with a presentation on Marfan 101 by Dr. Luciana Young, Seattle Children’s Hospital. A recording is available on our website. The next two webinars in the series are: • Taking Care of Your Aorta Dr. Alan Braverman Barnes-Jewish Hospital Washington University School of Medicine, St. Louis Monday, October 15, 7–8 PM Eastern • Loeys Dietz Syndrome Dr. Hal Dietz

Smilow Center for Marfan Syndrome Research Johns Hopkins University School of Medicine Thursday, November 8, 6–7 PM Eastern

DR. LUCIANA YOUNG, NEWLY APPOINTED TO OUR PROFESSIONAL ADVISORY BOARD, GAVE THE FIRST PRESENTATION IN THE SERIES.

Each webinar is one hour. It features a Power- point presentation followed by ample time to

ask questions. You can access it by your desktop, laptop, smartphone, tablet, or other device so you can watch the presentation. Or, you can simply dial in by phone and listen. Once you register for each webinar, you will receive a personal link for logging on. If you are unable to listen live, all recordings will be available via the Foundation’s website. To register for these webinars, visit marfan.org, click on patients & families, and then virtual medical symposium series. SAVE THE DATE Regional Symposium on Marfan Syndrome and Related Conditions hosted by

FEBRUARY 23, 2019 | LOS ANGELES, CA

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