Connective Issues Fall 2016

ANNUAL CONFERENCE

advocacy on Capitol Hill, interviews about Marfan in a range of media, and support of the Foundation’s Walk for Victory program as National Walk Ambassador. Cheryll Gasner Spirit of Service Award: Tim Joyce, volunteer photographer for the Foundation for more than 15 years. Cheryll Gasner Spirit of Service Award: Libby Sparks, APNG, Johns Hopkins Hospital, for her outstanding direct patient care and compassion and devotion to the Marfan community. The Foundation honored many other members of the Marfan and related dis- orders community for their successes in the areas of education, awareness, and fundraising. The awards were presented at the conference to those who were in attendance. Here is the complete list of individuals, group leaders, and Walk for Victory and marathon fundraisers.

CONFERENCE THANKS

Special thanks to the following individuals and companies who were instrumental in making this year’s conference a huge success. We couldn’t be more grateful for your time, talent, and support!

HOST

Mayo Clinic

SPONSORS Presenter

Aetna Foundation

DR. ALAN BRAVERMAN AND HIS WIFE, RE- BECCA, RECIPIENTS OF THE 2016 PRISCILLA CICCARIELLO AWARD, WITH ISAIAH AUSTIN.

Leader

Mayo Clinic Invitae

Kid With a Heart Award: Addison Izzo

Convener

Brody Lawson

Massachusetts Chapter of The Marfan Foundation Minnesota Chapter of The Marfan Foundation

Individuals: Cheri Benjamin Adam Bitterman Emily Braverman Rod Gray Alix McLean Jennings

Ryan Melendez Brooke Pulliam Alison Weust Maya Brown-Zimmerman for Alpha Phi Omega-Theta Upsilon Chapter

Contributor

Iowa Community Group

Chapter/Community Group Leaders: Rob Berklite: Mid-Atlantic Chapter Jennifer Reisinger and her daughter, Kelsey: Tidewater Community Group Jon Rodis: Massachusetts Chapter

EXHIBITORS

Brandi Smith: Nashville Community Group Sara Paul: Staten Island Community Group

Ambry Genetics Invitae

PHOTOGRAPHY

Walk for Victory Top Fundraiser for each Walk for Victory and Top Marathon Fundraiser:

Tim Joyce Photography

Atlanta: Becky Gunn Boston: Suzy Chaos

Scottsdale, AZ: Paula Bower Tri-State, NY: Michael Kramer Trussville, AL: Amber Harbison 2015 TCS NYC Marathon: Jamie Grant

Houston: Tyrelle Robert Pasadena: Kaitlin Mattice St. Louis: Gail Johnson

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