Connective Issues Fall 2015

VICTORY IS

“Getting answers to move past the unknown and enjoy life.” – DENISE DAMMANN, ROSEBURG, OR

SUSANNA HOLLINGSWORTH, FROM NORTH CAROLINA; CRYSTAL BRIDGES, FROM MONTANA; ERIN VAN ANDEL, FROM WASHINGTON STATE; TERI JOYCE, FROM NEW JERSEY; AND DEBBIE PHILLIPS FROM TENNESSEE — ALL MOMS OF CHILDREN WITH MARFAN SYNDROME, EHLERS- DANLOS SYNDROME, OR LOEYS-DIETZ SYNDROME.

“Having courage even when it’s hard.”

PETER DONATO A COLLEGE STUDENT FROM FRAMINGHAM, MA, WHO HAS LOEYS-DIETZ SYNDROME.

– OWEN GRAY, CYPRESS, TX

HEATHER EARNHART, OF CHICAGO, WITH HER DAUGHTER, GABRIELLA, WHO HAS MARFAN SYNDROME

KAYLA BRIDGES, OF MONTANA, AND PHOEBE HOLLINGSWORTH, OF NORTH CAROLINA

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