Connect Issues Fall 2020

Monday evenings are for teens. Every other week, a group of teens with Marfan, Loeys-Dietz, VEDS, and related conditions gathers online to chat, hang out, and play games. Led by Dominga Noe, Marketing Manager for the Foundation, and Peter Donato, Volunteer Teen Program leader, the groups were formed as a way to help teens make connections during isolating times and have fun together. Teens Game Night is held every first Monday of the month at 7:30 pm Eastern. Tabletop and video games are the activity of the night. TEEN NIGHTS – ONLINE!

Teen Talk is every third Monday of the month at 7:30 pm Eastern, and ranges from casual conversation to topics that teens with rare conditions need to talk to one another about. Both nights are free, but registration is required to get the login information. Game Night Registration: Teen Talk Registration: WALK FOR VICTORY®

Nothing can stop our fight for victory! Whether we are able to meet in-person or online, Walk for Victory returns this spring! Our first priority will always be the safety of our community and we all hope to be able to gather together in 2021. But if we cannot, we will continue our fight, thanks to an incredible community and our steadfast sponsors across the Marfan, Loeys-Dietz, VEDS, and related conditions community. New this year – share your victories by earning incentives as you raise funds with your team! At $100, you earn your first incentive prize and they get bigger and better as your team raises more. Hats, bags, and even Walk for Victory chairs could

be yours as our thanks for helping keep momentum going in our fight for victory. You can see all the swag and prizes, along with more Walk for Victory details, at In addition to new incentives, we’ve got new Walks this year in Canada, Chicago, Dallas, Nashville, and the Great Plains. We’ll also be hosting a Global Virtual Walk for Victory to continue connecting all those who do not live near a Walk city as well as our community around the world. Team VEDS and Team LDS will be a part of each Walk, too! Start or join a team today!


CENTIVE PROGRAM The more you raise, the more earn!



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