Connect Issues Fall 2020

The International E 3 Summit was truly a global event as one-third of the 2,800 registrants was from outside of the US. These E 3 participants were from 75 countries, with the UK leading the way with 163. The rest of the top ten were (in order) Canada, Australia, Spain, Mexico, Italy, The Netherlands, Ireland, Belgium, and German. Speakers came from all over the world too: Italy, Spain, Germany, Belgium, The Netherlands, Canada, and the UK, as well as the US. Presentations were given in seven languages – English, E 3 SUMMIT IS TRULY INTERNATIONAL “This, in our view, demonstrates the incredible benefits of international events that unite Europe and the USA, specifically for rare conditions…” incredible benefits of international events that unite Europe and the USA, specifically for rare conditions such as Marfan syndrome for which expertise is

Spanish, French, Italian, German, Dutch, and Russian – making it possible for most attendees to learn from the experts in their first language. This international representation was due, in large part, to the incredible partnership between The Marfan Foundation and VASCERN. The two organizations

so rare. We believe that taking advantage of online platforms to provide educational content and awareness is a great benefit for the Marfan syndrome and related conditions community. We look forward to co-organizing another event in the future.” Diana Maas, of Amsterdam and a member of the Dutch Marfan Association who has Marfan, agreed on the value of the online delivery of information. She said, “How wonderful that we have the possibility of watching presentations online rather than attending live. And it was very easy to connect

have a history of collaborating for international research events. This is the largest joint project surrounding patient education and support. “All of us at VASCERN were thrilled to partner with The Marfan Foundation and help make the International E 3 Summit a great success,” said Guillaume Jondeau, MD, PhD, professor of cardiology at Bischat Hospital, France, and the coordinator of VASCERN. “This, in our view, demonstrates the

p Guillaume Jondeau, MD, PhD, professor of cardiology at Bischat Hospital, France, and the coordinator of VASCERN.

with others through the app. I met people whom I never would've been connected to otherwise.” Watch for more international programming in the future.

u 54 Medical Sessions u 16 Quality of Life Sessions u 70 Total Presentations u 2,840 REGISTRANTS u Participants came from 75 COUNTRIES u 373 PROFESSIONALS in attendance u TOP REASON FOR ATTENDING: For 89% of attendees, the top reason for attending E 3 was Medical Information. Second most common choice was Access to Experts at 10%. u 7 Languages u 95 Presenters

4

Marfan.org