Connect Issues Fall 2020


Elijah Williams (@publicenemy1_), from Dallas, has been through four Marfan-related heart surgeries and has plenty of physical scars to show for it. He recently shared his story and his struggles to heal from the mental aspects of multiple surgeries via his Instagram account. As usual, the community stepped up to share experiences and support. Here are some of the responses.


You can now show the world that you support The Marfan Foundation and its divisions, the Loeys-Dietz Syndrome Foundation and The VEDS Movement, with masks* and t-shirts that feature our logos. The Foundation is making these new offerings available as a result of many inquiries from people in our community. Two new t-shirt designs were just unveiled (adult sizes are $30 while kids’ sizes are $25) along with several options for masks, including one that proclaims, Better Days Ahead. Two types of masks are offered – a basic mask ($10) and a premium mask ($13). Proceeds benefit The Marfan Foundation. To start shopping, please go to marfanfoundation .

*Please understand that our face masks are not a replacement for medical grade Personal Protective Equipment and, in circumstances where medical grade Personal Protective Equipment is recommended, you should consult a healthcare professional. The decision to use this mask is solely your own. Please remember that the use of face masks is not intended to replace other recommended measures to stop the community spread of COVID-19, such as social distancing, washing your hands, and refraining from touching your face. Follow the latest advice of the CDC and your own healthcare professionals as to how best to keep yourself safe.


Fall 2020

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